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Old 02-22-2009, 02:05 PM #1
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I've got some brainfog happening today (too much going on around here these days), but I wanted to say that I'm sorry to hear you had such a terrible headache last night. That must have been very bad for you to take yourself into a Canadian ER on a Saturday night and I hope you are feeling better today!!

Laura, please push your docs to get an emergency MRI, because you are feeling bad enough to warrant one. Your employer might even agree to pay the $500 cost for one at a private clinic, given how affected you are with migraines, etc.

Most of my headaches have been the spinal cord type, which start in the back of my skull/neck. Apparently I get migraines too, because I had all the "signs"; require darkness, waves in vision, can't open eyes, etc. . . . but the pain from them doesn't really register as "pain". My eye specialist called them "painless migraines", but I wonder now if most of the symptoms were actually caused by ON.

I saw a neuro-opthomologist recently, and she confirmed Uhtfhoff's in my left eye, plus "old" damage to the nerve to my left eye . . . so apparently I went through ON without knowing that's what it was. The only time I can remember eye problems was back in 2004, and that is when I was the eye specialist who said it was likely migraine-related.

I'm just telling you that story because it is possible that your headaches are related to ON, and you might want to have that checked.

Cherie
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dmplaura (02-22-2009)
Old 02-22-2009, 06:51 PM #2
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Quote:
Originally Posted by lady_express_44 View Post
I'm just telling you that story because it is possible that your headaches are related to ON, and you might want to have that checked.

Cherie
You know, when I read about ON, that was the first thing I thought of... the auras I had and a potential link to ON (maybe I had ON long, long ago!).

I really should get my eyes checked, even if my neuro thinks I don't have ON, and told me the auras are migraine.

I can imagine lesion from migraine mimicking MS. I did have the positive spinal tap as well for o-bands. Of course, those o-bands can show up in other conditions as well.
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2004 to present - Trigeminal Neuralgia
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9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
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