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Old 03-01-2009, 12:11 PM #1
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I have no solutions for you either, but wanted to say how disappointed I am that the JH treatment is not working for you. It seemed like a good possibility for RRMS patients when so many started on the program.

Any idea how the other patients who started about the same time as you on the protocol are doing?

gmi
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Old 03-01-2009, 01:37 PM #2
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copaxone took a FULL year to start working for me. I was so worried. They said it can take up to 24 months for it to really kick in on some very resistant folks.

I am sorry you are feeling lousy.
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Old 03-01-2009, 01:57 PM #3
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I'm also sorry that the HiCy does not appear to be working. I think you would need to check with JH neuros before starting tysabri again. For some reason, it does not seem like a great idea. I guess it depends on your immune system, etc. I do not really have any suggestions either. You were only suppose to be on copaxone for one year, right?
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Old 03-01-2009, 02:23 PM #4
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Well, Poopy, Keri. After all your hard work, this just totally sucks gravel.

Sending healing hugs for you, dear one..
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"Thanks for this!" says:
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Old 03-01-2009, 06:22 PM #5
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sorry keri. that is not good news.
i can't answer your Q about meds but i hope your dr can help you.
think about it and i'm sure you'll come up with the right option for you.

i hope you feel better soon.
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Old 03-01-2009, 07:24 PM #6
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Deji,

I know - but the thing is - I'm not on copaxone for the same reasons/mechanism that most people are on it for. After HiCy it's supposed to train the brain not to attack itself.... So, I'm only supposed to be on it for ONE year total, which will be in August.

I need to see what the docs at JH have to say about this new relapse....then I will know more. But right now, I'm not feeling confident. Feeling wired from the steroids going in my arm at this moment, but not confident.

~Keri
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Old 03-01-2009, 07:53 PM #7
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I'm sorry you are not doing well right now.
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