hugss to you and your daughter, been trying to catch up and read at times, and wanted you to know you have always been in my prayers for daughter and for yourself. hugsssss

sarah

Here's hoping that the middle of April test findings are definative, but nothing that can't be fixed. I'm in denial for you too Cherie..

Thanks so much for the up-date, Cherie. I'm glad your daughter is doing so much better and will keep praying that it continues. Can't remember (MS brain you know) if I mentioned before that with my fibro, many times my skin hurts even if a breeze blows on me. It's especially bad during a flare-up, just like MS. There are so darn many of these auto-immune and other type diseases with the same symptoms.

Please try to take it easy yourself, although I know what it's like being a mom -- and grandma!! We can stand anything for ourselves, but don't mess with out "kids"!!

Love and prayers........

I am sorry she's been so sick and had to go through all this. I hope it all turns out to be nothing serious and she bounces back Teenagers tend to be so resilient.

I hope you get back on your feet again soon as well. Keep us posted on the progress of the test results and get well, both of you.

Thanks Sarah, Sally, Judy and Cheryl.

Judy, I was originally considering Fb actually, because she was also complaining about two spots that were close to her collar bones, on either side, as being painful to touch. I didn't really know how to test the right spots, but she did "seem" to be sore in the other "pressure point" places that I tried.

At that point I was thinking everything just seems to be hurting . . . but when I tested other places, she had no pain. She'd have had to literally read up on the pressure points to be as spot on as she was about the Fb symptoms.

So, Fb seemed to fit, I thought.

When I mentioned this to our GP, he was not impressed. He told me to stay off the internet, and said "You know these things take time ... hopefully a L-O-N-G time". My doctor is NEVER this abrasive with me (well, except when my MS denial went on for 14 yrs ), so I was a bit taken aback by his response. He went on to say that Fb is a dx when EVERYTHING else is ruled out and they can't find a reason for the symptoms. He said that even that dx would take time ...

But I still have Fb on my radar screen, as my sister has that. She also has syringomyelia, which causes similar symptoms to our severe spinal cord ones, but the rest of whatever is happening to her could only be explained by Fb . . . at least so far.

Someone sent me some information (by PM) on a shingles-like ailment, that sounds interesting too. My daughter has actually had chicken pox twice (once minor, once major), so I'm not sure if she is a candidate for this condition . . . but the symptoms sure seem to fit.

You are right Cheryl, kids bounce back better than adults. This daughter has had severe second degree burns (from boiling water), and she coped very well when that happened. This has been a bit too long of a process for her liking, but she has learned to tune much of it out.

Cherie

Hi Cherie,

I have a big problem with doctors who get 'short' with patients. Through the years I had doctors who got short with me...which caused me to stop 'complaining'... therefore not being dx for over 15 years after my symptoms started. I decided maybe it was just all in my head. So you just keep asking as many questions as you want. I wish you and your daughter best wishes!

2 diverse suggestions, have they thought of Arnold-Chiari, espicially if there is a relative with syringomyelia....
and have you thought of having her seen by a chriopractor......perhaps she has issues in her neck.....i would want to rule out the first, before trying the second....