I'm SO sorry to hear that you are having such a tough time of it lately, Legz. I really hope that things start improving for you soon and I am keeping you in my thoughts and prayers.

I have had no experience with IVSM so I can't comment on that unfortunately but I would definitely speak to your Doctor and see what he/she thinks you should do.

I'm sorry that I can't help you more. Just know that I care about you and if you need to talk, I am here for you as I DO understand some of the side effects that you are having!!!

Take care of yourself and you are in my thoughts. Please keep us updated when you can!!

You know Erin you may be right. I was knitting on the loom earlier. I was trying to finish up a baby blanket for a friend of mine, which I gave up on when my other eye starting messing up. I am so bored that I actually called my mom and asked her to bring my DD and come spend the night. Fiance is pulling a 24 hour shift. One down side to living 50 miles away from all of my friends and family. So she is on her way.

Oh yeah so I can't really eat anything b/c of the heartburn and have been on a fruit smoothie and yogurt and water diet for 3 days. And I have still gained 8 lbs in 4 days. Told mom to bring me some books on cd to listen to. Waiting for her to get here so she can help bag my arm so I can take a shower.

I think next weekend after the steroids have worn off and the MRI's are over that I am going to kidnap the fiance and go to the winery and just take a couple days off.

Sorry you are feeling worse. sending (((hugs)))

((((((Legz)))))) The nurses at the hospital told me that IVSM doesn't usually seem like it's working until you have been off of it for a week or two. I found that to be true.....so hang in there..

You're loom knitting?? I've tried that. Goes too slowly for me. Looks cool, but too slow. I crochet more than I knit, hand knitting goes a bit faster than loom knitting for me, but still too slow for me. I crochet so much more quickly. I still love to play with yarn and the hooks and the pointy sticks.

I just finished my first knitted wearable (other than scarves) I knitted two wrist warmers. I'm surprised I actually was able to finish BOTH of the wrist warmers. (basically it's a knitted tube, open on both ends, that fits over my wrist and has a thumb hole for my thumb to stick out of.)

What I basically did was knit it flat, like knitting a scarf, and then when I decided it was long enough, I folded it into the tube shape and sewed it up, leaving a hole for the thumb.

Too bad I dont like wearing the left handed one. My left hand has had some weird numbness since just before Xmas, and I dont like the way the wrist warmer feels on the ball of my thumb.

I had a 5 day course of this when I first got diagnosed. It made me feel pretty energetic the first day, like I drank a case of Red Bull, but not the rest. It made me feel like I was weak and sore. I was only on the drip five days, but it took two weeks for the steroids to really reduce the symptoms -- especially my vision issues. The biggest issue for me was the emotional mess it made me. The nurse warned me that for some it was like PMS in a bag.

I hope you start feeling better about it Leggz, give it time

Erin I got my Kindle2 in February. I order it in December but had to wait until it was released. I love it that it can read to you. I take short breaks and let it do the talking. Right now I'm reading The Shack - awesome book.

Ha HA PMS in a bag. Cute. Actually the depression part sucks for me, but I was a little better prepared for all of it this time. Last time I had no idea what to expect and when my body and mind began reacting I was horrified.

Well, mom came and spent the night and did my dishes and vacuumed for me. She cleans when she is nervous. Works for me. that was very sweet of her. I finished the last drip this morning as soon as I woke up so i could take the stupid thing out of my arm which ihaad hidden under a big ace bandage all night to keep my DD from seeing it.

Now it's over and my face is on fire. I was able to stand under the cold shower for about 30 minutes this morning without having to wear a bag on my hand or arm so that was nice. I am hoping the withdrawal thing doesn't hit me this time like it did last time, but considering they didn't even prescribe me a dosepack to wean me off I am sure I will back on the phone with the neuro before days end.

I just made 32 oz of more smoothie stuff that is in the freezer and I have started the water flushing.

I have the Kindle 1, it doesnt have the text-to-speech capability.

My dad got his Kindle 2 in february too, he doesnt use the text-to-speech, but he's having fun with the K2 anyways. He took the change from his piggy bank to the grocery store and used the Coinstar machine to convert the change into an Amazon.com gift card. He's now got $100 and some change to buy Kindle books with.

I love my Kindle 1, but I'm hoping that I can get the K2 for my birthday. The last two years I've had problems with optic neuritis or just weird vision problems from the heat every spring, so I really want that text-to-speech.

Right now I'm reading a Star Trek novel. The Last Round Up. It seems to be taking place after Star Trek: The Undiscovered Country movie. It's pretty good so far, and it's probably the only book other than The Kindle Cookbook that I hadnt read yet before getting a Kindle. (The Kindle Cookbook is a book that a Kindle user wrote that explains all the little tricks and tips to use the Kindle 1...think they have an updated version for the K2 now)

I hope I get the K2 before I get another case of optic neuritis smacking me in the eye. I dont want to have to sit around and wait for it, or borrow my dad's K2 if my eye goes fubar again. I've had some blurry vision off and on for the past month or so, and some occasional eye pain (nowhere near what it was the first time I had ON) I'm scared that my eye will go fubar. I think that's my biggest fear from the MS other than paralysis. I'm scared I'll eventually lose my vision.

At least we live in a time where we've got all sorts of nifty gadgets like Kindles and computers and audio books on CD to use to read books. I'd probably go nuts if I cant read. (or listen to a book on CD)

Hi Leggzy,

I'm sorry for the IVSM problems. When I took it, I got worse (both times). I won't take it again unless I'm really bad. (I hate the taper with a vengeance.)

I hope you'll get past the ON soon.