Home Menu

Site Navigation



NeuroTalk Support Groups > > >

My update.

Reply
Page 1 of 2 1 2
 
Thread Tools Display Modes
Old 03-25-2009, 11:23 AM #1
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
  
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default
Quote:
Originally Posted by karousel View Post
So why do I still feel like crap?
Probably because our weather's so crappy in the north east, still.

I'm holding out hope that this winter will be done, pronto.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
karousel (03-25-2009)
Old 03-25-2009, 11:44 AM #2
soxmom soxmom is offline
Magnate
  
Join Date: Jan 2008
Location: massachusetts
Posts: 2,740
15 yr Member
soxmom soxmom is offline
Magnate
 
Join Date: Jan 2008
Location: massachusetts
Posts: 2,740
15 yr Member
Default
Quote:
Originally Posted by dmplaura View Post
Probably because our weather's so crappy in the north east, still.

I'm holding out hope that this winter will be done, pronto.
I think you are right , hopefull when we get our beautiful new england
spring weather is will lift our heart, spirits and get us moving.
__________________
sox
.

.
soxmom is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
karousel (03-25-2009)
Old 03-25-2009, 06:34 PM #3
Riverwild's Avatar
Riverwild Riverwild is offline
Magnate
  
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Default
I'm in agreement about the winter thing!

I also know that I have met you personally and unless you have put on a LOT of weight since that GTG in Mass, you are NOT overweight!

Is it possible that fatigue is the problem?
Even a small dose of something to help with fatigue may help. I felt like crap for a long time until the doc decided to start me on Provigil. The very first dose worked for me. I swear by it now. Provigil is expensive but there are other drugs out there that may help. I didn't realize just how much it was affecting me until I treated it.

__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
Riverwild is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
karousel (03-25-2009), Twinkletoes (03-26-2009)
Old 03-25-2009, 08:07 PM #4
karousel's Avatar
karousel karousel is offline
Senior Member
  
Join Date: Jan 2008
Location: Webster, NY
Posts: 1,956
15 yr Member
karousel karousel is offline
Senior Member
karousel's Avatar
 
Join Date: Jan 2008
Location: Webster, NY
Posts: 1,956
15 yr Member
Default
I gained about 7 pounds (since the GTC), not that much. But I feel like a slug and have no energy whatsoever. I have had fatigue ever since I can remember but this fatigue is very different than what I've ever experienced. Could this be the true MS fatigue? Or am I just out of shape? I know I am in denial a little about this fatigue. Maybe I should just call my neuro.
Last edited by karousel; 03-26-2009 at 05:31 AM.
karousel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Riverwild (03-26-2009)
Old 03-25-2009, 08:09 PM #5
SallyC's Avatar
SallyC SallyC is offline
In Remembrance
  
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
SallyC SallyC is offline
In Remembrance
SallyC's Avatar
 
Join Date: Sep 2006
Location: SW Ohio
Posts: 17,844
15 yr Member
Default
Good news, K..

Yeah, blame it on the ever changing weather carp..

Feel better..
__________________
~Love, Sally
.





"The best way out is always through". Robert Frost



~If The World Didn't Suck, We Would All Fall Off~
SallyC is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
karousel (03-25-2009)
Old 03-26-2009, 06:41 AM #6
Thumper2's Avatar
Thumper2 Thumper2 is offline
Member
  
Join Date: Oct 2008
Location: Right next to Bambi
Posts: 267
15 yr Member
Thumper2 Thumper2 is offline
Member
Thumper2's Avatar
 
Join Date: Oct 2008
Location: Right next to Bambi
Posts: 267
15 yr Member
Default
Quote:
Originally Posted by dmplaura View Post
Probably because our weather's so crappy in the north east, still.

I'm holding out hope that this winter will be done, pronto.
I agree totally. It's been unbearably cold here this week. I thought I could finally turn off the heat and save a few bucks.

Hopefully soon you'll be able to get out in the warm sunshine and will feel better
__________________

.
HAPPY EASTER!
.
Thumper2 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
karousel (03-26-2009)
Old 03-26-2009, 10:03 AM #7
hollym's Avatar
hollym hollym is offline
Senior Member
  
Join Date: Jan 2008
Posts: 1,690
15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
Default
True MS fatigue is tough to get around. My neuro explained that we get fatigued because our nervous systems are trying to reroute signals past damaged areas, so everything takes more energy. I also know that spasticity really increases my fatigue levels because my muscles are working against me.

I agree with River about asking for an anti-fatigue medicine. It's worth a try.
__________________
Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


.
hollym is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
karousel (03-26-2009), Lady (03-26-2009)
Old 03-26-2009, 12:28 PM #8
dmplaura's Avatar
dmplaura dmplaura is offline
Magnate
  
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
Default
I hope things are much nicer for you today/this weekend in the NE. It's warming up here beginning today. The snow's melting.... again.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
dmplaura is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
karousel (03-26-2009)
Old 03-26-2009, 12:34 PM #9
Twinkletoes's Avatar
Twinkletoes Twinkletoes is offline
Grand Magnate
  
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Twinkletoes Twinkletoes is offline
Grand Magnate
Twinkletoes's Avatar
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Default
No way are you overweight! You are a string bean!

Maybe instead of concentrating on losing weight, think about eating healthier?

Or maybe it IS the weather.

I do hope you'll start feeling better when you see spring at your doorstep!
__________________
Rochelle
.



.


I've lost my mind ... and I don't miss it!

LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF!
Twinkletoes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
karousel (03-26-2009)
Old 03-26-2009, 02:26 PM #10
karousel's Avatar
karousel karousel is offline
Senior Member
  
Join Date: Jan 2008
Location: Webster, NY
Posts: 1,956
15 yr Member
karousel karousel is offline
Senior Member
karousel's Avatar
 
Join Date: Jan 2008
Location: Webster, NY
Posts: 1,956
15 yr Member
Default
Twink I am trying very hard to eat healthier. I think if I do that, these 20 or so extra pounds should come off or I'll at least look better and if not that, then feel better.

The sun has been out for a few days now. I have a bit more energy but still feel that veil over my mind. I did a lot of yard work to day and I feel the good kind of tired but also feel that sluggishness (is that even a word?). Maybe every day I'll start to feel a little bit better!!

I hope you are all right that it's the weather. Thanks for your words of encouragement!
karousel is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lady (03-26-2009)
Reply
Page 1 of 2 1 2

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
An update and a thank you. Koala77 Survivors of Suicide 13 12-10-2008 01:50 AM
Update on my cat Jane Pets & Wildlife 8 09-30-2008 05:44 PM
Update on my Mom Peg24 Thoracic Outlet Syndrome 17 04-30-2007 03:14 AM
Hip Update Brian Peripheral Neuropathy 24 04-10-2007 07:32 AM
My Update buckwheat Thoracic Outlet Syndrome 14 03-08-2007 05:35 PM


All times are GMT -5. The time now is 05:25 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home