Quote:
Originally Posted by Grammie 2 3
I am so annoyed that we still cannot get info on new cases of pml. I, too, found that there are now 28 cases. I have again called Active Source to be told FDA has new case info-to have them tell me the company has that info  I love being bounced around. I was also told by FDA rep that I can write to Freedom of Information Act... I will but I am so frustrated/cynical right now I have already decided "IF" I get any info it will probably be to tell me the # of pml cases and NOTHING else and then do I get the pleasure of writing them each month.
Has anybody's Dr been able to get/give any info ?
Linda |
Biogen/Elan have stated that they intend to provide monthly updates to docs. I've got ways of accessing this update and will post updates of confirmed PML case counts when they are available.
Probably better to focus on the PML mitigation methods they will be rolling out in the near future as these will be more applicable in indicating a given patient's risk.
12-23-2009, 01:34 PM
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