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Old 02-25-2010, 11:59 AM #11
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Join Date: Nov 2008
Location: Fredericksburg, VA
Posts: 2,091
15 yr Member
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FIN-> mY experiences: I did Copax-> had no bad reactions other then injections site bumps/itching, which is normal for putting a needle in your skin. However, stopped taking it and almost all of my sx went away within 10 days, redid MRI and found C aggrivated the MS and I had a whole mess of new lesions.

Then I refused DMDs for a while, gave up beef and pork went on strict diet and vitamin regiment, worked great (Only had a few sx left) until we moved and the MS flared again. Doc wanted me on Rebif, but agreed to try Av first since it was less shots during the week. Had horrible reactions to Av, eventually started breaking out in hives and she pulled me off.

My options were then given to me: Tysabri or Chemo.... and the doc was very strongly against chemo.

So far (3 infusions, next one scheduled for next week), I have no side effects other than feeling drained of energy the day of the infusion. No night sweats, fever, rashes, flu like sx... so for that I am happy. BUT, the latest MRI shows I have grown more lesions and a few of the new ones are active. I have not seen an improvement in any sx so far, but again I have only done 3 infusions.

In any decision you make, I wish you the best of luck.
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