Last season I did not get the H1N1 flu shot. I have gotten the yearly flu shot for many, many years but after much consideration decided against the H1N1 shot. Now the H1N1 has been included in the regular flu vaccine.

For those on Tysabri what do your Drs' recommend and what is your opinion, please ? The vaccine is out earlier this year and I will not see my AZ neuro till Nov-whom I trust (CO neuro not so much ) As I am typing I thought about calling her Duh ! Still would like to know what others will do.

I found out my AZ neuro is part of the Stratify Trial so I will get the blood test in Nov. Hoping and praying ...

Thanks
Linda

Your doctor is your best source of advice for this.

I had the flu shot and the H1N1 shot last year and had no adverse effects except for the usual sore arms for a day. (I had them the same day in both arms)
I'd rather have the shot than the flu! I work with people who don't know how to stay home when they are sick and they drag every germ in to share.

My neuro recommended not getting the shot

How come? Because of the H1N1 component or is the neuro just opposed to flu shots in general?

I do not know She is in AZ (my CO's opinion means nada to me)I had a return call from the office mgr. I will see her in Nov and talk to her then.

On another site a poster explained the H1N1 is not from last year-must be fresh. That it is just included as one of the flu's this year. I have weighed both sides, since getting the shot for many years will probably get it or not

Linda

Ok so the decision was made to continue the ty even though it has brought my thyroid back from the dead.neiro says she has to test my cd4 every month before infusion and if it drops below 200 they have to pull the plug. Then of course we discover my ins preauth expires on sunday so they scheduled me for today which means no time to test it this time. Anyone else being told they have to be tested monthly?

Legzz,

No, no requirement for me to get monthly CD4 testing. The CD4 testing will tell you about the strength of your immune system. Why don't you ask your Neuro to get tested for the JC Virus Antibody first. The monthly testing would seem to be overkill if you test negative and might be appropriate if you test positive.

Chris

My neuro told me that the C4 and C8 counts don't tell us anything that would be helpful while you are on Tysabri. I've asked several times (and even another neuro in the clinic) but I don't remember the reasons why they said no on testing.

I had the reg flu shot last yr as did my kid. We did not have the H1N1. ( my choice) Then I was told the reg flu shot must be 15 days or more before TY. As usual no recommend either way.
I did not call the neuro this year - I've had mine as has my kid last week. So far so good. :hug

Yesterday I had my 49th infusion !
October will be the beginning of my 5th year. Since I now go 5 weeks and am considering six the #s do not compute with the years, nor will they.
I am very thankful for the life Ty has given me Fampridine (Ampyra) may play a role-I don't want to give either up!
Linda