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Old 04-19-2009, 09:49 AM #1
peekaboo peekaboo is offline
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Default ms fibro how many here dxed with both?

hi all,

my old name was peachy however for what ever reason i could never get logged back in with name. anyway i am brewing with questions regarding those dxed with both fibro and ms.

i am more frightened and overwhelmed now than when i recieved my ms dxs in 97.

this pain is unreal and unrelenting...and i am not sure where to begin. the neuro i saw referred me to a rheumy after adding cymbalta and naproxen to my growing med list.

oddly enough a rheumy is the one that stopped the maddness in 97 for me however suspected lupus as well and i ran to a ms specialist.

i feel like a fool now having never given any credit to a fibro dxs. question the ms dxs now as well and wonder where i am going to find the strength to move foward.

heck i dont know where to start anymore and that alone scares me speechless. any adive is greatly appeciated. thanks for the time.

peekaboo aka peachy
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Old 04-19-2009, 11:10 AM #2
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Well, I think you did the right thing as far as getting started goes--you posted here. Welcome, or welcome back!

You've probably checked out the fibro forum, but just in case:
http://neurotalk.psychcentral.com/forum12.html

Someone will be along shortly who has both...I know I've seen posts before and considered how poorly I might deal with having MS and fibro. You'll find help here!
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Old 04-19-2009, 12:10 PM #3
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thanks blessings.....you may remember me from ms world. peachyplane there.

i did post on the fibro board here and just haven't recieved any responses thus far so i thought i would try here....knowing a lot of peeps from ms world whom i feel a connection with lol post here.

right now is a really tuff time for me as i sit here with a rice pack on my shoulder trying to ease the pain from the ice pick that is in my left shoulder blade.....foriegn waters as far as treatment is concerned and girl my very core has been shaken.

trying to keep the faith and not panic however the anxiety a pain and tack on insomnia are consuming me.

thanks for the rope !!
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Old 04-19-2009, 01:17 PM #4
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Tie a knot, and hang on!
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Old 04-20-2009, 01:33 AM #5
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Hi Peachy!

Just found your thread and wanted to let you know that I feel your pain!!!! Yes, I've been diagnosed with both MS and Fibro. Sometimes it's difficult to tell which pain goes with which thing, but there are some days that are true h@#$!!!!! Today was one of them for me since I seem to be very weather sensitive and it's supposed to rain later today. Can usually feel it coming about 12 hours ahead.

My MS dx came first in 1990 and then fibro followed in 1995. I've had that literal pain in the butt for 14 years. After trying just about every pain pill imagineable, I find two Aleve (naproxin) work the best for me in the morning to take the edge off the pain and help with the stiffness. For the nerve pain associated with the MS, carbamazepine (Tegretol) seems most effective.

Probably nice warm showers or soaks in the tub would feel great, but it's not possible for me now that my legs no longer work much and my time is spent in a powerchair.

I won't lie and tell you it isn't a tough road to travel, but we don't have any other option so usually I try to make the best of things and do what I can. Take care and all the best to you.
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