Quote:
Originally Posted by 4boysmom
I don't think you can blame Biogen for high infusion center costs. My last couple of doses of Ty were around $2650 for the med, and $150 for the infusion center. I don't think my Rebif or Avonex was much cheaper than that for the med. I'm on Copaxone now, and I don't know what the total is, just my co-pay.
I'll tell you what is heart-breaking. When you go on Ty, love being on Ty, then develop NABs and have to go off Ty and move to Copaxone. PML was never a concern. If you get it, you get it. I could also be hit by a car, but that isn't going to stop me from driving.
Random thoughts from an unhappy C user!
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While Biogen doesn't control the costs of the infusion centers, the very nature of Tysabri and its related problems have certainly thrown caution to the wind for these centers. And when there is possible high medical liability problems involved, up go the costs! The CRABs, in general, are about 25 - 30% cheaper but injecting yourself often and the heavy side effects for many users, make them more difficult to administer.
Sorry to hear that you ended up with NABs while trying Ty. Because of its potency, that is one of many problems with it. And while PML was never a concern for you, it is likely keeping thousands and thousands of MS patients from trying it.
Harry
04-24-2009, 12:16 PM
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