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05-07-2009, 09:43 PM
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Wise Elder
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I am sorry to hear things did not go well with the MRI and neuro. I hope you start feeling better soon.
I have no experience with Rebif so have nothing to offer you in regards to that. But will support you in what ever you decide is best for you. 
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| "Thanks for this!" says: | Jappy (05-08-2009) |
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05-07-2009, 10:21 PM
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Grand Magnate
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i'm sorry you havn't been doing so well.
i've been on copaxone which is a little needle but daily. i traded that for the possible side effects of an interferon. but, i'm sure your dr thinks rebif is the drug of choice. maybe you should talk to him again and have a deeper discussion. whatever you decide i hope you feel better too.
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Judy trying to be New Skinny Butt ______________________ You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should. -------------------------------------- "DESIDERATA" by Max Ehrmann |
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| "Thanks for this!" says: | Jappy (05-08-2009) |
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05-07-2009, 11:54 PM
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#3 | |||
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Grand Magnate
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Jappy, I'm glad to see you posting, but sorry about your lousy news.
 I'm on LDN too. My neuro wouldn't discuss it, either, so I got a Rx from my GP. It takes awhile for your body to get used to it, but just a couple of months or so before you can build up to 4.5 mg. daily (optimal for MS). It has given me more stamina. Not every day, but I have more good days than I ever used to. (I've been on it since last August). Remember it's Your body, Your disease, Your decision. Good luck on your remodeling, too!
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Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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| "Thanks for this!" says: | Jappy (05-08-2009) |
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05-08-2009, 07:25 AM
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#4 | |||
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Elder
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I have never been on Rebif, but was on Betaseron, and did fine till my liver got unhappy. Am doing the copaxone dance now, and must admit I have fancied the idea of laying down all needles in favor of a better diet, and exercise routine.....hubby keeps waving needles at me. I think he would be terrified to go bareback through the world of MS.
No advice, just hugs
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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| "Thanks for this!" says: | Jappy (05-08-2009) |
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