((((Hugs))))

I am sorry to hear things did not go well with the MRI and neuro. I hope you start feeling better soon.

I have no experience with Rebif so have nothing to offer you in regards to that. But will support you in what ever you decide is best for you.

i'm sorry you havn't been doing so well.
i've been on copaxone which is a little needle but daily.
i traded that for the possible side effects of an interferon.

but, i'm sure your dr thinks rebif is the drug of choice.
maybe you should talk to him again and have a deeper discussion.

whatever you decide i hope you feel better too.

Jappy, I'm glad to see you posting, but sorry about your lousy news.

I'm on LDN too. My neuro wouldn't discuss it, either, so I got a Rx from my GP. It takes awhile for your body to get used to it, but just a couple of months or so before you can build up to 4.5 mg. daily (optimal for MS).

It has given me more stamina. Not every day, but I have more good days than I ever used to. (I've been on it since last August).

Remember it's Your body, Your disease, Your decision.

Good luck on your remodeling, too!

I have never been on Rebif, but was on Betaseron, and did fine till my liver got unhappy. Am doing the copaxone dance now, and must admit I have fancied the idea of laying down all needles in favor of a better diet, and exercise routine.....hubby keeps waving needles at me. I think he would be terrified to go bareback through the world of MS.

No advice, just hugs

I say try, you can always quit. No "what ifs"to contend with. Doc. said try a DMD, I did Rebif, no bad side effects but didn't hekp me (PPMS, so no big surprise.) Tried Novantrone because "maybe" it would help, threw up, lost a few hairs, but it didn't work, but I tried You're in charge, you know better. Listen, but make your own decisions. Seeing new neuro, will ask for LDN. If he's not open to it, bet my PCP will prescribe it for me. Then I'll try. Know some successes, know some it did nothing for. But I don't know what it will do with me.

Joyce I can't give you any help with the drugs but I can give you a

Aw, Jappy, that bites. No point in making a big decision when you're feeling high-strung. You know the drill, get over this hump and then think about it.

Are you satisfied with this KY neruo? I'm sure he's not the only one available to you and it may be worthwhile to consider others. But, again, after you feel a bit better.

I've missed you around here, please give yourself time to snap out of this one so you can come back and bake me some pies.

Ewwww, the visual on that still bothers me, kicker! What? You got hairballs? LDN won't help with that, lol!

Okay, back to the thread.

Thanks everyone for your thoughts on my problem.

You are right it is my decision, my body, that is why I haven't been on
any of the meds since they came out. I didn't want to.
The neuro I had in NJ was great he never tried to push me into the way
he was thinking. Always let me decide for myself after I checked everything
out about the treatment.

Even when I had a flare he would wait to see how things would go
before he would give me steriods. Most of the time my body claimed itself
without the drug.

I am going to give it much thought and have been talking with my
family, but I seem to be leaning towards not to do it.

I feel I have had the best med I could get, that is my Faith. It has
helped for 25 yrs. As a lot of you have said that STRESS is one of our
worst enemies.

Since the move I have been under a lot of that. But, before moving
had 3yrs. of my DH fighting cancer then passing away in 2006. Then after
that it was nothing but a lot of stress. The neuro gave me a script for
Elavil this time to see if that will help with the stress and another for the
nerve pain that I have been having.

I am going to take one day at a time. Thank You everyone for letting
me let everything out, because you are the only ones that know how I
really feel because of how we share something so horrible.

CINDY---when I get my new kitchen done, I will start experimenting
on some new pies.

Jappy