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Old 05-12-2009, 08:58 PM #1
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Default Hello....I am new here.... and to M.S.

Hi. I was sent to this site for support. I Was diagnosed on 9/08 and been very very sad ever since. I just cant seem to break this cycle. I have been to so many doctors cause I feel so crappy and they all say it is my anxiety and send me home. But now I know what I am battleing and it is empowering but very scary at the same time. I am on copaxone and 21 perscirptions now. I just had back surgery in January and slow to get up and move around. PLUS I just dont want to anymore. Feel very heavy. I hope to somday be of a support for sombody. Just need to get out of this major funk. ANY ideas? I feel like maybe my meds are not strong enough. I know I have to do this myself and no meds and nobody can help me I am just not sure how. Must find strength from somwhere.
anyways life rolls on and it isnt fair.
This is who I am anymore.... Monica
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Old 05-12-2009, 09:36 PM #2
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Hey Monica, welcome to NT. Sorry to hear about your diagnosis and what you've been through. It is tough.

You'll be happy you found this place. Lots of folk to speak to and find comfort with.
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10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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Old 05-12-2009, 10:14 PM #3
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Welcome, Monica ..You've sure been going thru it. Be patient with yourself. It's a kind of grieving, I think. I went thru some of that (still do from time to time, though it's much better). It WILL get better, as cliche as it sounds, it just takes time. You've found the perfect place for friendship and support. MS makes any surgery tougher to get over, takes a bit longer..But you'll do it!
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Old 05-12-2009, 10:27 PM #4
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I like your name. YoYoYo. That describes our lives. But eventually you don't go down as low as you did before. We have all been there and have either had the strength to bring ourselves back up or had a wonderful person in our life to drag us up. Some of us have found that wonderful person here. Just stick around, let us know how you feel.
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Old 05-12-2009, 11:06 PM #5
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So sorry for what you are having to go through. I can relate somewhat. I was dx with ms over a year ago. Just had back surgery a couple months ago. I agree, it does take longer to get over a surgery with the ms. Just try to be patient with yourself. It is definitely a different life. So take your time and don't expect too much.

You are in my thoughts and prayers.
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Old 05-13-2009, 01:18 AM #6
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Hi Monica and Welcome to NT!! It's nice to meet you, but sorry it has to be here. So sorry you've been going through a rough time. Yes, we do go through an actual grieving period for the life we had and expected to have forever. But as others have said, it does get better and a place like this is wonderful for the help in getting us over the bumps in the road.

Have you asked for any literature from your local MS Society? Maybe your meds need an up-date?? Feel free to ask away -- we're here for you!

All the best in your MS journey!
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Old 05-15-2009, 05:04 PM #7
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Hello Monica and another welcome to Neurotalk here. Sorry to hear about all the trouble you've had, but I'm glad you found us. Everyone here is very helpful and friendly, so please make yourself at home.

(like your usernamer)


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Old 05-15-2009, 05:35 PM #8
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Default Kind words of encouragement


hey,

i knew to this site as well.

you know you not alone and yep this is a good site to go to and see that there are others out there just in the same boat as you

you know how i cope? with the day to day situations i go through with my 12yr old daughter. i pray i sing to the Lord and i beleive. even though it seems like nothing is happening to improve her its improving me to help her carry on. thats a strength that no man can give in is only God.

I pray that if this is an answer for you then you will find what you are looking for.

God Bless



Quote:
Originally Posted by yoyoyomonica View Post
Hi. I was sent to this site for support. I Was diagnosed on 9/08 and been very very sad ever since. I just cant seem to break this cycle. I have been to so many doctors cause I feel so crappy and they all say it is my anxiety and send me home. But now I know what I am battleing and it is empowering but very scary at the same time. I am on copaxone and 21 perscirptions now. I just had back surgery in January and slow to get up and move around. PLUS I just dont want to anymore. Feel very heavy. I hope to somday be of a support for sombody. Just need to get out of this major funk. ANY ideas? I feel like maybe my meds are not strong enough. I know I have to do this myself and no meds and nobody can help me I am just not sure how. Must find strength from somwhere.
anyways life rolls on and it isnt fair.
This is who I am anymore.... Monica
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Old 05-15-2009, 05:47 PM #9
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Welcome to you, too, SaltyChips.

Quote:
Originally Posted by salty chips View Post

hey,

i knew to this site as well.

you know you not alone and yep this is a good site to go to and see that there are others out there just in the same boat as you

you know how i cope? with the day to day situations i go through with my 12yr old daughter. i pray i sing to the Lord and i beleive. even though it seems like nothing is happening to improve her its improving me to help her carry on. thats a strength that no man can give in is only God.

I pray that if this is an answer for you then you will find what you are looking for.

God Bless
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Old 05-17-2009, 12:07 AM #10
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Welcome to you also, Salty!! Do I understand you correctly that it's your 12 year old daughter who has MS? God Bless Her and you as you care for her in this daily struggle. Feel free to join in, we'd love to get to know you!

Hugs.......
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