Hi. I was sent to this site for support. I Was diagnosed on 9/08 and been very very sad ever since. I just cant seem to break this cycle. I have been to so many doctors cause I feel so crappy and they all say it is my anxiety and send me home. But now I know what I am battleing and it is empowering but very scary at the same time. I am on copaxone and 21 perscirptions now. I just had back surgery in January and slow to get up and move around. PLUS I just dont want to anymore. Feel very heavy. I hope to somday be of a support for sombody. Just need to get out of this major funk. ANY ideas? I feel like maybe my meds are not strong enough. I know I have to do this myself and no meds and nobody can help me I am just not sure how. Must find strength from somwhere.
anyways life rolls on and it isnt fair.
This is who I am anymore.... Monica

Hey Monica, welcome to NT. Sorry to hear about your diagnosis and what you've been through. It is tough.

You'll be happy you found this place. Lots of folk to speak to and find comfort with.

Welcome, Monica ..You've sure been going thru it. Be patient with yourself. It's a kind of grieving, I think. I went thru some of that (still do from time to time, though it's much better). It WILL get better, as cliche as it sounds, it just takes time. You've found the perfect place for friendship and support. MS makes any surgery tougher to get over, takes a bit longer..But you'll do it!

I like your name. YoYoYo. That describes our lives. But eventually you don't go down as low as you did before. We have all been there and have either had the strength to bring ourselves back up or had a wonderful person in our life to drag us up. Some of us have found that wonderful person here. Just stick around, let us know how you feel.

So sorry for what you are having to go through. I can relate somewhat. I was dx with ms over a year ago. Just had back surgery a couple months ago. I agree, it does take longer to get over a surgery with the ms. Just try to be patient with yourself. It is definitely a different life. So take your time and don't expect too much.

You are in my thoughts and prayers.

Hi Monica and Welcome to NT!! It's nice to meet you, but sorry it has to be here. So sorry you've been going through a rough time. Yes, we do go through an actual grieving period for the life we had and expected to have forever. But as others have said, it does get better and a place like this is wonderful for the help in getting us over the bumps in the road.

Have you asked for any literature from your local MS Society? Maybe your meds need an up-date?? Feel free to ask away -- we're here for you!

All the best in your MS journey!

Hi Monica and welcome,
21 prescriptions sounds like a lot a medication besides the Copaxone. Maybe one of your meds is making you feel heavy, down and out, and lacking in enthusiasm for getting well and getting your life back on track.

MS does have the 5 steps of grieving, and surgery for the back is no picnic in the park, but the back should heal with time. Have you gone to PT? Do you have any friend or support person you can talk to and rely on?

You should discuss these feelings you are having with your doctor, Neuro, or another doctor if you need to. He/she can evaluate your medications and you might be surprised that you are bouncing back in no time at all.

I had about 15 or so major surgeries for many different problems including the back. It drains you for many months. It is another issue to grieve over.

You need to talk to us more on here and rant, vent or do what will make you feel better. Just writing down how you feel helps. We are all here to help and support each other when needed. Join us.

welcome monica. Sorry you are struggling.


Many with MS find fatigue an issue. it sounds like you have been through alot, and it just may be time to rest up, and regain some of that stamina. Back surgery, new diagnosis of MS, new medicines, having injections everyday. its a tough adjustment. I was a wreck my first year, and many here will tell you their first year was very hard.

Pull up a chair, and grab your reading glasses. I think you will find you are in good company here.

Welcome to the club house

Welcome to your new home, Yoyo (great name for an MSer..

I'm so sorry for your DX of MS and having to have back surgery on top of that..ugh..

Come on in and join us in our rants and fun too. We all do understand..

Just wanted to welcome you to NT. Sorry for the diagnosis. You will meet alot of wonderful people here. Theres also tons of information. Glad you found us