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Old 05-27-2009, 07:40 AM #35
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Dejibo Dejibo is offline
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Join Date: Jan 2008
Location: New Hampshire
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15 yr Member
Dejibo Dejibo is offline
Elder
Dejibo's Avatar
 
Join Date: Jan 2008
Location: New Hampshire
Posts: 7,332
15 yr Member
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Hello Susie! Welcome to the club house.

to diagnose MS is a process, its not a quick jump. Please remember that there are more than 100 diseases that can mimic MS. From a simple B12 def, to Lyme, Lupus, Sjogren, Vit D def, RDS, and so on. It take a while to rule out so many other things before deciding on an MS diagnosis. So, pull out your hat of patience, your gonna need it.

Keep a journal. Keep a symptom journal, and keep a medical records journal.

Keep track of whom you saw, and why, and what were the results.

Many of us found that going to the big boy MS centers were what finally tipped the balance one way or anther. Many require a lumbar puncture, and some can diagnose based on symptoms, and MRIs. It will take more than one MRI during a course of 6 months normally before they will start to talk seriously about whether they do or dont think this is, or isnt MS. There is a ton of blood work to rule out other things as well. Since MS doesnt have a blood test that pops up positive or negative we must rely on ruling out other conditions that do.

For now, try to be patient ( i know easier said than done) and get some rest, and learn to budget your energy. its exhausting to run from MD to MD to MD to blood tests, and to keep up your normal life while chasing a diagnosis. I do hope its not MS. I hope its something easy like B12 for you.

pull up a chair, and hang out. We will wait it out with you.
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