LA -- I'm sorry you seem to be down in the dumps right now. Probably everyone here has felt that way at some point during the course of this lousy disease......you're not alone. Of course that doesn't help how you're feeling.

Have you considered trying one of the other CRABS? None of them agreed with me -- nor prednisone or solumedrol -- but I've been taking low-dose naltrexone (LDN) for a few years now and am very happy with the results. Taking a capsule everyday is so much easier than an injection. Have you done any research about it? There is a sticky on this site with links to other places.

At my last neuro appointment, he said that for the number of years I've had MS, 19 official and most likely 14 before diagnosis, I should be in worse shape and that the LDN must be working. Just a few thoughts for you to consider.....it's way to early for you to completely give up!!

Take care.......

Yep, yep and yep, Jim said.

I can totally relate, LA. It's a defeated feeling. I'm so sorry you're having to go through this.

Have you thought about LDN? It's just a pill you take at bedtime. I did the DMD's and couldn't handle them. LDN was my last resort......and I'm so thankful I tried it. Just wish I had done it sooner!

It is an awful feeling. I am finally MAD about the situation and something has to change.
I need to do a lot of reading about LDN before I go to the new neuro on Monday.

LA

dear LA,

i havn't had to make that decision yet but i certainly understand.
it's very hard to not feel well day after day and have the shots make it worse.

i've been on copaxone from dx. i had a hx of depression and we didn't want to make it worse with the interferons. you have to do a small shot SQ everyday but it doesn't cause flu like sx's. in the beginning i had unpleasant site reactions but with practice and time they have lessened quite a bit.

whatever you decide will be right for you. and take your time.
please let us know about your appt.

oooh oooh !!! ME ME ME!!!

I have talked myself into each daily shot for a long time now. I am sick of it. Why am I sticking myself every single day? Why? I have lumps, bumps, I am tired, I am overwhelmed, and I am quickly reaching the point of saying enough.

I go in July for my MRI and follow up appointments. I may be laying down my needles. lets see if I get a second wind by then.

I know EXACTLY how you feel.

Yep, LA, I quit Copaxone over a year ago (took daily shots for 9.5 months). I just got tired of it and wasn't convinced it was helping. I've been taking LDN for 10.5 months now. I like it much better.

Good luck to you with your new Neuro!

IMHO you never give up and admit defeat - that's just too much.

I've had long times of doing nothing (PPMS responds to little), Gave up Rebif after 2 years, it was doing nothing, swear it made me feel worse than MS- gave me more MS like symptoms, non - ambulatory so they wouldn't let me in Fingolimod clinical trial, but tried. Trying 4-AP soon (non-FDA approved but my neurologist will prescribe -- must be done by a compounding pharmacy - Will try LDN next if this doesn't help - not a great success with PPMSers. If Neuro won't prescribe, bet nice PCP will. Not going out of country, but if stem cell becomes available will try. If nothing is left, will stop until next thing comes. MRIs are bad for me (hate them, I spazz and negate process), not much help (duh, I know I have lesions, loss of walking shows all the progression I need to know) so won't do anymore. But while I make decisions for me, take breaks, I will never give up. Me and Don Quixote (it was a book and musical!!) jousting with windmills. "To dream the impossible dream" the song goes. Yes.
0)

It is good to know others get it.

I am considering LDN. I want to see what this neurologist says on Monday. I want to check him out and see if he might be open to that idea.
I do not understand LDN or really know what it is except for what I have read from others who use it.
I am also considering another one on the crabs and I am sure I do NOT want an IM or one that causes the awful flu symptoms. I never got over that problem.
If he is not I have another neurologist on my list.

Thanks!
LA