Hi..new here. Wanted to introduce myself and give a little history and ask what yall thought. I am a mom to an almost 4 year old and wife to my high school sweetheart. I'm almost 28 years old, and I live in WV. Nice to meet you.

please if you are reading this, bear with me because this is hard to deal with as I am sure you know and probably a little wordy...

I had my first real 'attack; in Dec. and lasted about a month give or take, but it was paroxysmal. It had been creeping up on me bc i remember feeling very tired to like the point of almost feeling drunk for a while before this happened.

I was inthe store and I remember feeling very dizzy and lightheaded and hot. I started getting visual things like a dot in front of everyone face and the lights were weird. I chalked it up to being tired again, went home and rested and that was that. About a week later, I woke up and could not urinate. I went to ER bc I thought I had another stone. But no stone no infection and I was eventually able to urinate myself--- no cath. The next day I woke up and could not urinate again, I had to push it out. Then I laid back down and my whole feeling from waste down felt tingly... but like it wasn'tthere. Very odd. It lasted about 1/2 hr or maybe more but I went back to sleep. i woke up and my balance was very bad. That night I was urinating like every 10 minutes. My balance stayed bad for several weeks. My legs felt very heavy like walking in cement and I was very foggy tired. I could not and still cannot do heal toe with eyes closed, I almost fall over. My balance and coordination were terrible.

I also developed a twitch-like whole body for 3 days straight during this time.
I went to see my PCP and I had abnormal hyper reflexes and + romberg. She scheduled MRI, and I began to see this neuro.

My MRI from Dec reads
" there are focal regions of abnormal signal within the periventricular white matter. The largest lesion is adjacent to the posterior aspect of the body of the right lateral ventricle and is somewhat ill defined and measures 9 mm, ovoid in configuration. Within the right parietal corona radiata, there are 2 additional rounded foci of white matter signal abnormality measuring 2 mm and 3 mm respectively. There is a 2mm rounded focus of abnormal signal within left frontal white matter. There is one additional lesion seen within the parietal white matter within the left hemisphere measuring 7 mm just lateral to the atrium of the left lateral ventricle"

So my neuro tells me that I had a few pinpricks of dots that he thought was normal. I got the mri myself after that though--- and remember being shocked. I questioned him as to why he and the radiologist have such conflicting reports and he gets all cocky with me of course...

No O bands in spinal tap.
VEP was within normal range, but again I am confused bc neuro said 'there may have been some discrepancies and we may have to redo it' but didn't yet. He said they start to get concerned when there is a 10 ms delay, and mine was about 8 ms bw the 2 eyes, so the lab states it is 'still within the normal range'
I went to an opthomologist recently and the good news is he said my optic nerves look ok, but my vision is fine so no reason for the weird visual stuff. He said he is sending a report to the neuro about how my left eye (the one that periodically hurts and give me issues) has 'different retinal cells' from the other one.

B12 fine, thyroid fine. I do have a venous angioma that he never even mentioned to me. He also never mentioned my 4 cm ovarian cyst or my sinus problem and had I not gotten the report I might have not known. He said he thinks the radiologist made more out of the brain mri that what it was.

I had a follow up mri after 6 mths and the good news is there is no new lesions, the other news is that a different radiologist read it and sees the same things the first one was. So call me crazy but I don't think 9 mm lesion is normal for a 27 year old. The did not ever enhance.

I asked him about Lyme, he said it's not around here (I live in the northern panhandle of WV!) I asked about Lupus, he said it is very rare and to he doesn;t know much about so I should see a rheumatologist. THEN he said to me after I was asking him where I stand with ms, which he does not believe I have, that 'it's almost like you want ms'

I said EXCUSE ME? I was about to start balling. I said nobody wants ms, I don't want ms or anything wrong with me. but something happned to me and I want an answer and things don't make sense here with conflicting reports.

I'm so frustrated and scared and tired.

I get weird shooting pains or hot poker pains, my eye hurts just occasionaly but I don't think I had a full fledged bout of ON yet, I get dizzy, I have been getting headaches more frequently, I get muscle twitches, my balance goes a little loopy every now and then, but not like december...I just feel blah and tired.

I don't know what to do. Part of me needs and answer, part of me wants to just forget about it. I am afraid if I go to ms clinic that I am being dramatic bc my brain is not that bad according to neuro.

What do yall think? help is appreciated

Thanks...