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Old 06-20-2009, 03:52 PM #8
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Riverwild Riverwild is offline
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Join Date: May 2007
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Riverwild Riverwild is offline
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Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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I haven't heard anything further about that specific test lately, but you can be sure that when they do develop a reliable test, they will be trumpeting it everywhere.

It's my doctor's policy that tests will be done on the CSF because it's a much better indicator than blood, so MRI, LP and decision. He also says ANY relapses are suspicious when on Tysabri and that if there is any indication that a patient is starting a relapse he would follow the same procedure.

I've read on other boards about people who were taken off Tysabri due to relapse, increased inflammation or other adverse indications, including blood work.
Some of them weren't happy and some had the attitude that it was better than PML.

I am not sure if socialized medicine would preclude MRIs. I think that any doctor even if overseas would get the MRI approved and done immediately, because of the history of the drug.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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