Thanks guys (ahem, ladies)

I'm not really scared, it is just that I found such limited information other than it was the "worst" version of lupus. I sat here thinking to myself "Gee, that's not really helpful." I imagined that just like MS or any other chronic illnees, you could have a version of X that is usually mild (but knocks some folks for a loop) you could also have the bad version and be relatively fine. Having the NPSLE initials/name brought up much more info on google - but I don't care for the name because it makes it sound like a mental health issue which I don't have. They ought to let patients decide what to name all these various disorders - lol

I think that each person shows symptoms dependent upon what area of their body was attacked, regardless of their illnesses name. Sort of like get a spot or 2 in the wrong part of the brain and it puts you in a chair, whereas other folks could light up like a Christmas tree and have much more mild deficits. Yes?

Still pretty sure it is MS but definatley show signs of SLE. Who knows, maybe after all this time I'll hit the lotto and be tagged with both {my attempt at sick humor}

Thank you for all your help decoding this everyone!!!

Was originally dx, by Mayo Clinic in 2002, as likely having CNS Lupus, although they did not rule out MS. Over a year later, my neuro changed the dx to MS.

However, last summer, I began to see an MS Specialist, who wondered why the dx was switched. She re-did some tests, and concluded that, although my symptoms more closely resembled lupus, the tests appeared to back up the MS dx.

So, at this time, she is assuming that I have MS, and treating me for that. However, she continues to keep lupus in the back of her mind as a possibility.

Like you, I found very little information about CNS Lupus, specifically. For me, MS, as a more common disease, seemed less frightening.

~ Faith

The only thing I do know is you can have a diagnosis of Lupus AND a diagnosis of MS.

My son's ex-girlfriends mother has both Lupus and MS.