[barb02]

I currently take 900 mg of gabapentin three times per day. I originally started out at 300mg, three times per day two years ago; was then increased to 600 mg, three times per day a few months later; and last November was increased to my current dosage.

About six weeks ago the burning returned and it seems to be getting worse. I had not called my neuro because I did not want to increase the amount that I am taking. I was hoping to "ride" it out. I have also gained about 35 pounds since being on neurontin. I have tried to reduce my dosage, but have not been successful and it was working.

I also experience burning in my left forearm, but it does not seem to bother nearly as much as the burning on my head. It starts at the top of my forehead and is on the entire left side of my head.

I finally gave in and called my neuro's office a few minutes ago.

Any suggestions?

[Kitty]

Barb

No answers.....just hugs. I'm sorry you're having such a hard time. I gained weight on Neurontin, too. Seems we have to take one step forward and two steps back with some of these meds. I hope your Neuro can give you some answers.

[Lady]

Hi Barb,
When I am in the sun, I mean with the sun directly on my head, it burns and hurts. Even for hours later unless I go in and wash my hair and run cool water on it.

I may put an ice pack on it for a short time, on and off. It is not sunburn, it is just my head can't stand the heat of direct sun. I feel like it heats my brain, odd feeling. Then it goes away, unless I do it again.

I have always wear a hat in the sun, when I know I will be exposed. Mostly a baseball-girlie-type-hat around the neighborhood or a hat that is currently in style. Whimsical even. I don't know if that will help you, just what happens to me.

What did your Neuro say?

[soxmom]

So sorry you are having a rough time Barb...my burning stuff has returned
too.....I think its the heat for me....Im hoping once september gets here
it will be gone. s to you!

[barb02]

Mine is not necessarily heat related. It just seems to get worse throughout the day. Although if I get really hot or stressed out, it does seem worse.

[SallyC]

Feel better, ((((((((((Barb))))))))), and let us know what the Doc says.

[Friend2U]

So sorry your head is burning.Mine did that for several months. Then finally dissappeared. Luckily it hasn't been back for quite a while.

I hope something will give you so relief. I didn't take anything for it, just tried to tolerate it. That was shortly after my dx. I was probably being a little tougher than I needed to be and now, would probly take something if I could get some relief.

[dmplaura]

Originally Posted by barb02

Mine is not necessarily heat related. It just seems to get worse throughout the day. Although if I get really hot or stressed out, it does seem worse.

I hear you. I have this as well, and I can relate to what you folks are saying.

I can best describe mine as it feeling like my head's in one of those hot air dryers that fits over your head. That kind of overall but in some places hotter sensation. Or a crawling heat feeling. It's unnerving as heck!!!

Mine also gets worse with heat, but ONLY with weather heat. When the humidity goes up, I get the head heat full time.

Now that it's not humid and cool here this week, mine's gone away. Soon as it warms up though I expect it to return a bit.

I didn't find any of the previous drugs I tried really helped it, and I haven't been on Cesamet long enough to find out if it's going to help the heat sensation. I do know it helped the more acute area of burning and pain so far.

I gave Neurontin, Amitriptyline, Tegretol and a couple others a shot before.

[Aarcyn]

Sometimes I want it to be mind over matter. I want to trick myself so that my brain does not send out a signal to the nerve. It does not work often but I still try to fool myself.

My suggestion? A frozen bag of peas. Drugs may help but maybe just the sensation of cold can help.

[AZjanie]

Since Sunday; the top of my right foot from toes to ankle burns!!

I have been putting a bag of frozen peas on it which I keep for whatever body part is burning next.

At least with MS there is variety and not like some really boring disease!