Karliann,

I have the exact pain you are describing.
It started off with Carpal Tunnel like sensations in my wrists and elbows. I have all the tests and nothing was found. I also have severly red hands and feet.

Now I ache like that all over. Neck, Knees, hands, arms - everywhere. My neuro seems to think it is a MS symptom. It will be 2 years in January since it all started. I haven't found much to help it, but I do know extreme temp changes, sitting/sleeping still too long and sleeping any position but my back makes it worse.

Some days it bad. Really bad. Those days are hard.
There are easier days too, those are the ones I live for.

Best of luck to you

Hi,

Did you get a lymes test? Have the doctor do a Western Blot. If more than three lines of the test are positive, you might consider pursuing treatment. Lymes and MS can be very similar, but a hallmark of lymes is joint pain.

Kathleen

Personally, I have had no issues with joint pain, EXCEPT what is definitely tendonitis in my elbow. I have had it treated 3 or 4 times over the years, by my physiotherapist, and each time it comes 100% good after several visits and lots of homework (specific exercises).

If it is tendonitis, PT should fix it. It's not a completely painless or a quick recovery, and the longer you leave it, the more scar tissue there is (so the harder it is to rectify). Alternatively, you can use some sort of steroid shots (can't remember the name exactly). Apparently that is NOT 100% effective, and fairly painful too, so I have not opted for that route before.

I have had a feeling that my tendons are pulled to the max, but that occurs in my forearm and calves; I don't feel any pain in my joints. This is apparently spasticity-related and a regular stretching routine helped for this (as did braces, A/D's). I haven't had much problem at all from this since starting on LDN though.

Cherie

Okay, my mysterious onslaught of pain everywhere has mysteriously disappeared.
I'm beginning to believe it is MS related (spasticity in the flexors) and is the result of the two week trip hubby and I took to Colorado late September. We drove out with the truck camper and took the back roads going out there (stopping at all the sights). 2 weeks in the camper when the weather is beginning to change (I believe) is the culprit. I probably over did it. Spring and Fall always brings a bit of a flare up for me anyway. I am seriously going to start a daily stretching routine.
My hubby and I are both retired and he wants to travel, travel, travel. Now...while I think this is all wonderful.....is it going to kill me? Oh good grief.

Something occurred to me . . .

The only time I have had bad joint pain was when I started on Tetracycline, and had an allergic reaction. Apparently this is a rare reaction, but something to watch for when you start some new meds.

Cherie

When I am in extremely bad pain????? I use elastic bandages and wrap my wrists, forearms, ankles feet, etc... After a while, it seems to help, at least getting the pain down to a dull roar.
So far none of the nsaids have helped. When my back is doing it's thing only more so...a nice warm shower helps, however be sure to cool down, if not then you might get sick from being too warm or hot.
I try laying against one of our warm doggies, the support, and warmth does help.
feel better
Geri

I just read a medical journal article online & it says that 65% of people with MS also suffer joint pain. I hope this verifies the reality of your pain, Karilynn. It's not imagined, it's a fact. Best to you all who suffer this frustrating disease & all the symptoms of it.

Hi Dixie - and welcome to Neurotalk!

I have been having BIG issues with joint pain - in my hands, arms, legs.....even my heels hurt!! I discussed this with my Neuro when I went for my appointment last week and he prescribed Diclofenac (anti-inflammatory). He also sent me for a complete blood workup to rule out Arthritis and Lupus. I haven't gotten the results from those tests yet.

I had never heard that joint pain was a symptom of MS but nothing about this disease makes any sense to me...

Joint pain can be part of spasticity.


Welcome to NeuroTalk, Dixie

I also have the "joint pain" Karilann describes, especially in my hands, but in my legs too. It comes and stays a few days, becoming progressively more painful and then one day "WHAM" It's gone completely.

There are times it feels as if my hand or whatever is being affected is actually broken. After the initial pain is gone I will have what I call systematic cramps for a few days, where it spasms in waves, but nowhere near as painful as the initial pain!

The doc said...spasticity...and told me when it happens to up the baclofen for a few days and then taper down when it goes away. Stretching also helps, along with soaking in hot water or doing a hot wax bath on the affected area, but only for a few minutes.

It bites when it's the hands. Even holding the steering wheel hurts like hail! Forget carrying anything that has any weight to it. When it's a leg...I may as well just sit down cause I can't even carry ME!