Hi MMX,

You sound like you're going through the mill and for that, I am sorry.
I can't give an MS opinion. I don't know enough about it myself yet.

But reading your other posts are interesting (if too complex for my fried brain to follow).
Perhaps if you could put an idiots guide to supplements for ms and fatigue that you know about.... ??? sorry, it's all about me tonight.

Thanks for the support, Yes symptoms suck, plain and simply. I just don't know if they are caused by MS yet or not.

I could certainly put up a thread related to supplements that can help with fatigue.

I could name a few: NADH (Active B3), Ubiquinol (Active Coenzyme Q10).

http://products.mercola.com/coq10-ubiquinol/

http://www.smart-drugs.net/ias-NADH.htm

These two would be the best ones since they work directly on the electron transport chain in the krebs cycle to facilitate mitochondrial functioning.

Another one would be Coenzymated B Complex. These are Coenzymated B vitamins in their active forms, they are also potent methyl donors.

http://vitanetonline.com/description...al-Peppermint/

Off the top of my head since MS is causes a destruction of the body's myelin sheath the coating on the nerves - Methylcobalamin would be another excellent supplement which directly builds/supports the nerves.

EFA's (essential fatty acids) are required by the body for lots of processes as well as nerve functioning and growth. Best source for these is Hemp seed oil, Udo's oil and extra virgin coconut oil.


I know people have cured their MS with helminthic therapy (which is purposeful infestation with a helminth "worm" in your intestinal tract which bonds with the host "you" and helps to alter immune responses and reverse auto-immunity). People with auto-immune conditions have had success with this. Chron's disease, ulcerative colitis and others.

If i was sure i had MS and diagnosed i would try helminthic therapy.

It is hard to tell and you would need follow up with your dr.

A lot of the symptoms you describe could be related to you thyroid condition. I would definitely ask the dr to run not only the standard TSH but get your T3 and T4 tested as well.

Secondly, have you had any X-rays or testing of any kind on your back? A herniated disc could cause the pain you experienced while getting a massage.

In the meantime, hang in there. For some the road to an MS diagnosis is long. Keep a health journal of both diet, symptoms, and things that trigger symptoms.

Let us know how you are doing and what the out come of your EMG show.

Go to NMSS.org and find tons of support, info and help.

I am so sorry you are going through so much. it sounds like alot to carry. There are more than 100 things that can mimic MS. Its a process of ruling things out. Blood work to check your B12 and Vitd. Lyme, Lupus, and infections. Then you need MRI to check for lesions in the proper places, and a spinal tap to check for remnants of mylin being eaten. its not a quick process, even for those with glaring symptoms, and big MS centers looking after them. You must have 2 clear periods or disease activity with at least a 2 month to 2 month break inbetween relapses for most to qualify. There are some that qualify without meeting that critera, but its rare. It really is a huge laundry list of things that can, and do mimic such events. I wish I could color code the world.

I want eyebrows to change color when we are sick. If you have heart disease, your eyebrow turns red. MS it turns orange. Lyme is green, and so on. Wouldnt that be great to go to the MD and say "hey! my eyebrow is orange, what does this mean?"

hang in there. Make sure you get a team on your side, and keep a journal. Keep track of what tests you have had done and what the results were. Going to an MS center can help. the NMSS.org has a list of ones close to you.

Till then, pull up a chair and hang out. We have folks in every stage of this awful disease. From limbo island, to PPMS. your in good company.

Thanks for the support.

It has been tough.

Due to all this i have not been able to work or study.

My group of friends has diminished/disappeared because of these issues.

I have support mainly from family.

But it is good to talk to other with similar problems on a forum such as this.

Friends, and even some family disappearing is a common theme in any long term illness. From Cancer to MS. It seems folks can be sympathetic for a short period and even quite helpful, but after a few weeks, or months, many just want to get on with their busy lives, and we get further and further from their minds, their lives, and their to do list. The visits turn into phone calls to say "sorry, I was so busy, I didnt make it over there today" and we say "oh, thats ok, dont worry about it, I know you have things to do." and then, we go from an almost daily call to a once a week. Hang in there. your true friends will either rise to the challenge, or you will meet new friends who meet a new standard of what is acceptable behavior in a friend.

You have a group of instant friends here. We may not be face to face, but we walk the same path. Diagnosed or not, we walk the same path. It may help once your conditions calms, if it calms to get out to volunteer at places that would have folks that would be more understanding. Or attend some local MS support groups, or some local events. Making new friends can be so much fun.

Hang in there, and keep us updated.

Helminthic therapy????

well i learn something new every day. Just Wiki'd it. Holy cow !

Thanks for the links

I have been on helminth therapy for about 8 months or so - have had 3 doses so far - one more planed in a couple of months. I take it do lupus/sjogrens. I friend of mine with Hashimotos is considering it. Not sure if this was a confirmed diagnosis for you, but seemed to be indicated? Can you provide a further update about how it has gone for you in the longer term? The one year on update sounded very promising.