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Old 08-24-2009, 02:38 PM #1
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No, no, no. Don't think you're argumentative at all. I think you are intrigued. No conflict with anyone, none at all. I'm happy to share.

But, if anyone would like to debate about it ........
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Old 08-24-2009, 03:19 PM #2
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Just wanted to say here that I did the ABX protocol for almost a year and it did absolutely nothing for me. I could not tell that I was even taking anything while on it. The drive for me to get to the physician who prescribed it was 14 hours each way, so I was serious about trying it and it failed to help me.

You among others have been told that it does not work for everyone and no one knows why. One guess might be that the ones it works for actually have the CPn while others that it doesn't work for don't.

During the lifetime of having this disease I have checked out everything I know to check out and there is nothing to this day that treats SPMS with the possible exception of LDN.

So your statement that trying new stuff can get old did not set well with me, especially since again, you do not have the disease and have not had to cope with all of the crap this disease throws our way for years.

Most of us here have tried all of the meds available to us and would try more if there was more to try. I am aware of most (probably all) treatments being discussed on the net as are most others here and we have to decide for ourselves which ones make sense and which ones don't.

gmi
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Old 08-24-2009, 03:44 PM #3
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Quote:
Originally Posted by gonnamakeit View Post
Just wanted to say here that I did the ABX protocol for almost a year and it did absolutely nothing for me. I could not tell that I was even taking anything while on it. The drive for me to get to the physician who prescribed it was 14 hours each way, so I was serious about trying it and it failed to help me.
That's cool that you tried it! Which ABX were you on?

Quote:
Originally Posted by gonnamakeit View Post
You among others have been told that it does not work for everyone and no one knows why. One guess might be that the ones it works for actually have the CPn while others that it doesn't work for don't.
That logically makes sense to me. Did you do any of the tests for before you started the protocol?

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Originally Posted by gonnamakeit View Post
During the lifetime of having this disease I have checked out everything I know to check out and there is nothing to this day that treats SPMS with the possible exception of LDN.
A lot of folks swear by it. I think it's great when folks find something that helps them feel better.

Quote:
Originally Posted by gonnamakeit View Post
So your statement that trying new stuff can get old did not set well with me, especially since again, you do not have the disease and have not had to cope with all of the crap this disease throws our way for years.
I cannot pretend that I have MS, that wouldn't be very genuine. I certainly do not intend to upset you or anyone here.

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Originally Posted by gonnamakeit View Post
Most of us here have tried all of the meds available to us and would try more if there was more to try. I am aware of most (probably all) treatments being discussed on the net as are most others here and we have to decide for ourselves which ones make sense and which ones don't.
Exactly, it's all about self determination. Suppose someone here (for entirely unrelated reasons) started sleeping with their bed tilted on an angle. Suppose they found after 4 weeks that they were walking better. Wouldn't you think it would be a natural to get online and tell others? That's how I see it. Kim and I have a realy cool experience to share and we're not looking to force it on anyone, we just think there are others who don't know about it that might be helped by it. Ken

Last edited by notasperfectasyou; 08-24-2009 at 04:07 PM.
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