[dog lover]

I was diagnosed on Wed. by the Neuro/Optho with Ocular MG. I think they did every eye test imaginable!!! I was a little surprised by being DXed with Ocular since I have weakness in my left arm and hand. The Dr. doesn't think that is related to the MG. I am now wondering if there is something else going on or if he is wrong. I started noticing it about 6 months ago. When I would wake up in the mornings my arm and hand felt weak and shaky. I also had a hard time when i was blow drying my hair or putting dishes up on shelves above my head. That was several months before the ptosis started and I thought maybe I was sleeping on it wrong. He is going to start me on Mestinon after the testing is all finished. I had the antibody test on Thur. and am scheduled to see a MG Neuro specialist on Oct. 1 for an EMG.

My questions is has anyone ever noticed the ptosis getting much, much worse after all the eye tests? My eye hasn't been the same since. It is so droopy that sometimes it shuts and feels like it is sticking. It takes a few seconds to get it open again. I feel like it must be related since that is when it started getting worse. I have tried ice packs and am getting plenty of sleep and nothing is helping. I am hoping it will improve again as the days go by.