I havent spoken with my neuro yet about this, simply because Im not sure if MG has anything to do with it.
It happenned several times last night at a family get together and meal, and it bothered me a bit. Enough to move me to post a question here.
Let me be upfront and say right away, I never had great teeth, and have alot of caps and dental work. Im also guilty of never being a great caretaker of my own teeth, so Im sure that comes into play, although my dental hygienest(okay, I also cant spell)told me last year my gums never looked so good.
So while Im speaking lately, or chewing, I notice my teeth seem to click, like my upper jaw is dropping my upper teeth on my lower teeth, and its involuntary, and in the middle of speaking or chewing, I have to take a split second, because sometimes it actually hurts my teeth. That split second clicking of them together, its uncomfortable.
My neuro told me in his professional opinion, having treated so many mg patients, he doesnt think my symptoms will go past ocular, so I wont immediately think this jaw dropping and teeth clicking have anything to do with mg, could even be the mestinon, cause I notice after I take just a quarter of a tablet, sometimes I grit my teeth while doing something strenous, almost grinding them.
I try to ignore it all, and just move on.
This clicking teeth stuff is becoming noticable to me, and last night too noticable.
Anyone ever have this stuff with only ocular version?
(I know it effects all muscles, but Ive never really directly experienced anything I can 100% blame on mg except my eyes)
If this is off base, Im apologize in advance for bringing it up.
Im not being a crybaby, Im just looking for info from anyone that might have had a similar experience. (or reaction to mestinon)

I had something similar happen to me when I first got MG but had not started taking Mestinon. My teeth would not align properly all the time when I tried to chew or talk and this made me feel like there was something wrong with me teeth (I had a cavity filled a few weeks before so I thought the dentist did something wrong). I actually considered going to the dentist it was so bad. Sometimes they clicked together similar to what you described and it hurt. This problem has gone away now that I am taking mestinon.

I hope you figure this out.

This has happened to me as well, and also the grinding/clenching which makes no sense because when I clench them then my jaw muscles get weak..LOL, so, no, you are not alone.

Allen, You aren't being a cry baby! Geez. It's not a good thought to think that ocular MG may be going generalized.

It sure makes sense that the clomping (for lack of a better word) together of teeth is due to muscles being weak. Talk to your neuro though. Do you clench your teeth when you sleep? That could make them weaker.

I have generalized so I don't know if ocular MG patients experience this.

I have to say, I think your neuro is kind to be so optimistic!

Annie

Hey Allen,

I have the teeth issue too...Feels like the front teeth 'slip' and don't align properly...I also have jaw problems, though...I don't have a weak jaw, I have an extremely stiff jaw...Sometimes, I've noticed that when my tongue is weak (the tip), it makes this 'slipping' sensation more pronounced, prolly 'cause my tongue isn't actually reaching my teeth...It gives me a major lisp...Makes me sound like the wedding planner from father of the bride (Martin Short)...lol

You're totally not being a baby at all! Even if you 'only' ever have ocular symptoms, it's no walk-in-the-park to not be able to see...It's not an 'only' situation at all...It's a big deal! Please don't see your situation this way! We're all on the same ship, it's just that different parts get warn out...The boats made of all these parts, though...They're all important!

Nicky

IM still around looking in now and then to see how everyone is feeling.
Like usual, I feel guilt coming here knowing Im not as ill as so many unfortunate lovely people here.
Im alot angrier though. Ive been working harder, doing alot of house work myself, refuse to hire anyone, work until my muscles and eyes abandon me, having muscle spasms like crazy, but will not, never, give in. Im sorry, I know 7, 8 months is enough time to adjust, but I cant.
MG sucks, like any neuro disease, and I will never concede.
I like to read here because alot of people inspire me. You guys are great.

Hey Allen,

Yeah, MG sucks big time. I've had it for 11 years and I still have days I just want to kick and scream...sometimes I do. My concern for you is one of these days you are going to push too hard and the MG is going to knock you right on your butt...it always wins! If there is a support group in your area would you be open to going to one? It couldn't hurt, right? If I remember correctly you live in LI, so I would think there would be one near by. You can check with the local hospitals. One more thing...never feel guilty because you are not as ill as some others are here. We are all here to support one another, so please keep posting. Hang in there and at least try to take it a little easier.

Hugs,
Pat