[dog lover]

I had my EMG tests done yesterday and want to say that I am SO thankful that you all forewarned me about the pain. The Reptetitive stim test wasn't that bad but the single fiber was HORRIBLE!!! She inserted the needle into my upper cheek right below the temple. I have always thought my pain tolerence was high but this was almost more than I could stand. I hope I never need that again because right now I think I would refuse it. I cried through the entire test and all the way home. Deser Flower, I think my reaction was very similar to yours!!! Today I am swollen and you can see a small hole where the needle was inserted. When I got up off the table I looked down and saw a white tube about the size of a straw that was covered in blood! At one point she asked me did I want her to stop because she wasn't sure I was going to be able to tolerate it. I couldn't catch my breath and thought I was getting ready to go into a crisis. I asked her how important the results were as far as my treatment goes and she said that they would be helpful but with the pos. antibody it wasn't as important. Annie you had asked me what antibodies had come back pos. The Neuro asked me the same thing and of course I didn't know. I need to find that out. I plan to do some research to find out what the difference is between the 3.

Once again I left without meds. She told me she was just the Neuro who performs the testing and I would have to get my scrip from my Neuro Optho. I looked this morning and realized my appt. with him isn't until Nov. 24. I called his office and left a message to see if I needed to have my appt. moved up or would he go ahead and call in Mestinon since the testing is complete. I don't know if I can make it another 7 weeks without meds. I told her how driving is almost impossible for me with the ptosis and blurry vision and the horrible fatigue. She said she didn't think my fatigue was all MG but felt it was a combination of that plus my blood disorder which also causes fatigue. I talked with her about the weakness in my arms and she didn't seem to think they were being affected much but did say there was weakness in one of my legs. Today I am just sick of this disease and fed up with Drs. who don't get it!!! Sorry for the negative posting but I am so irritated today. My body is exhausted and I can't hardly keep my eyes open today! I am so thankful I have a place like this to vent!!!

Erin I got your message and PM'ed you last night. Hope it went through I felt like I was in some kind of fog.
Kendra