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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#11 | ||
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Junior Member
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Hi Nicknerd-
Yes our MG affected areas sound exactly the same. Don't know about you but I lost 15 pounds in the first two weeks because I couldn't eat. Didn't hurt to lose it though. Had enough to spare! I've even gained a tad back cuz it's now easy to overeat again. Yes Huperzine-A is derived from a chinese club moss. It is also a ACE inhibitor the same as mestinon. However it appears to primarily target the receptors in the brain with very little left for motor controls when taken orally. That's why it's being used mostly in alzheimers and other mental dementia trials. I did find a source that said they got promising results using it for MG but that it was being injected intramuscularly and at larger doses than what was used in brain studies. I was using it orally at 100mcg per day total split into two 50mcg doses-one in morning, one in evening. It seemed to help but not in the rapid way people have said mestinon works. I never took the mestinon so I can't compare myself. It's almost as if it would take a day or so of using it before I noticed a change. Also it never completely eliminated the symptoms but did seem to mitigate them somewhat. That's why I was asking if anyone else had used it. To see if they had similar results. Believe it or not though, I did notice a bit more mental clarity/sharpness after starting its use. No negative side affects noticed whatsoever while I was using it. I stopped taking it a bit over two weeks ago to see if my symptoms would get worse when stopped. It did seem as if I was worse for the next 2-3 days. But again, not drastically. The kind I used was purchased at GNC. Don't know if they are in Canada or even what your laws are concerning supplements. It's available for sale on the internet. Just punch Huperzine A in google and stand back. More info in later installments. I will eventually get it all out. It took me almost an hour just to do this much! Pathetic, I know.......... Aries51
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Please forgive what may seem as short or terse tones in either my questions or responses. I two finger type so I tend to keep things short and to the point. Takes WAY too long to type flowery phrases. No offense EVER, EVER intended. |
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"Thanks for this!" says: | Nicknerd (10-03-2009) |
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