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Old 06-20-2009, 01:39 PM #1
SaskMom SaskMom is offline
Junior Member
 
Join Date: Jun 2009
Location: Saskatchewan, Canada
Posts: 6
15 yr Member
SaskMom SaskMom is offline
Junior Member
 
Join Date: Jun 2009
Location: Saskatchewan, Canada
Posts: 6
15 yr Member
Red face Intro - Hi from Saskatchewan (Canada) Newbie

Hi everyone, below is basically my intro post from the "newbie" area...I'm repeating it for context to my questions at the end. ...I'm so glad to have found this site!

I'm not really sure whether or not I belong in this forum, but I'm not sure where I belong...in terms of a health category.

I am currently under the care of a GP, an ophthamologist, and a neurologist. All have mentioned the possiblility of MS, but they don't have real "proof" of anything...and I'm not sure that much else has been ruled out, either. I've had two (relatively) clear MRIs in the past two years, but I have Babinski's sign in both feet, and a few other obvious signs and symptoms. I'm scheduled for two types of evoked potentials tests on July 13th, 2009. I hope that something helpful shows up.

...in order to share why I'm here, I've included (below) the general info that I used in order to introduce myself on the main "welcome" forum a couple of days ago:

I don't have a diagnosis yet, but have several symptoms that are neuropathic. In the fall of 2007 I developed double vision. I've also been having muscle twitches for more than 3 months now...every day, all day. I get sharp 'electric' type pain sometimes down a limb. Sometimes my feet go numb, sometimes my hands tingle. I have had a rash on my face for about 10 years now. I was told it was rosacea though. I have some hair loss too. There's more, but I think those are my main symptoms.

My mom has primary progressive multiple sclerosis. She is 56 years old and has lived in a nursing home for 10 years already. I have two aunts that were diagnosed with SLE (Lupus)...both on my dad's side of the family. One is struggling with lung problems mostly, and the younger aunt (58 years old) passed away due to Lupus in April 2009.

I don't know what I have, but it would be nice to find out. I'm hoping to learn from those on this forum...about their lives and the roads to (and beyond) their diagnosis.

I am interested to know what your initial symptoms were, and how long it took to get a diagnosis. What tests and procedures did you have? What had to be ruled out first? Does anyone have multiple health concerns that made the diagnosis more tricky? Sorry for all the questions...just wishing, hoping, and praying for some real answers.

Kind regards,

Jayne
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