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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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10-08-2009, 01:24 PM
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Welcome to the group. I know the waiting is so difficult isn't it? Please do not hesitate to go to the ER if you are having breathing problems. Diagnosis or not, if you cannot breath properly you must be helped. I know what you are talking about when you say you cannot reach your neuro by phone. My neuro has an answering machine and I get so upset that I cannot speak to a person when I feel I am going downhill. Well hopefully your answers will come soon. Take care ~ Melanie
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10-08-2009, 09:49 PM
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Sue, thanks for the "little bugs under my skin" post. I had these feelings before being diagnosed with MG and my doctor said it made him doubt the MG diagnosis because he didn't understand what I was describing. These "little bugs under my skin" came shortly before my weakness would increase so I knew the feeling was related to whatever was wrong with me. Thank you for some good words to describe it.
__________________
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| "Thanks for this!" says: | suev (10-08-2009) |
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