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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Senior Member
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Hey sweetheart!
Annie and Redtail are so right! MG does bite! It is so hard to NOT overdo it on our good days, we never know when we are going to HAVE good days....... ![]() I know exactly how you feel - it is so hard! ![]() I've been told to only do 80% of what I can when I feel good - I never listen! MG truly is a tricky little disease - the fact that we can't predict when we are going to feel well - so of course we are going to use the days to our best advantage...... ![]() I now it is hard, but please hang in there and know that you can always come here to vent - we know exactly how you feel! Love, Erin ![]()
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Erin . |
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