Quote:
Originally Posted by AnnieB3
Yeah, Jana, it's "odd."
And what is REALLY upsetting is that this person has a THYMOMA. Sure, it could be thymoma-induced MG that will go away when the tumor does but still.
How can they be certain it's not MG and is ALS? And if the expert is the one I know, it is disconcerting. I know, we don't have all the facts and we are not doctors. But you have to wonder.
Could this person have a B12 def. due to the thymoma? Mayo did this study a few years ago where they injected radioactive B12 into people with cancer. The B12 went straight for the tumor. Uses it up. So are the symptoms a B12 deficiency plus MG (like I had in 1997-99)? Or something else?
It's all speculation really. I hope they are doing everything to help this patient definitively determine what is "IS" and not just what it's "NOT."
Annie
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Yeppers, Annie. I thought with THOSE symptoms and a THYMOMA -- MG was pretty much a "done-deal". But, I'm just a DUMB BLONDE!!!!! Honestly, it was all I could do NOT to join that forum and give some "free" advice. Pre-MG jana would have done JUST that. MG-jana tries to conserve energy -- but, is saying a prayer for that poor soul who may not be getting the best medical care. *BIG sigh*
11-15-2009, 11:18 PM
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