when I asked about it, the nurse said they will get it soon.she even gave me the pharmacists name and I told her my reasons for not wanting to switch brands if another hospital had a different brand.
they got it in at 3pm, so Ive been hooked up since then.
they dont go more than 80 for the rate, so its a long hookup.
I just want to get home saturday night for the indy playoff game.

Hi. Have been reading about your IVIG journey. I just came home from 3 days of IVIG treatment. Went smoothly but I really don't feel any different than I did before treatment. This is the third time I received IVIG. First time for five days. Second time for three. Those two were emergency treatments. This time it was scheduled. My Doc thought if he gave me regular treatments every 6 to 8 weeks that maybe I would go into remission. I feel no difference. I'm just exhausted from being in the hospital from all the beeping, needle sticks, BP readings etc. The on;y thing that bothers me is muscle ache in the middle of my back. Probably from sitting around for days. Hope you feel great after your treatments.

ellen, Im sorry you havent felt better.
this is not my first stay in a hospital, but this one is the hardest Ive ever done, and Ive been in for back surgeries and melanoma and reconstructive surgery.
a hospital is the last place on earth to sleep. patients who sleep are either totally exhausted or drugged.
I find it amazing that at 11pm the loud speakers go off in everyroom and the message is Lisa, you have a phone call!
they wake everyone on the floor. the sirens and bells, the constant moaning of other patients, nurses yapping, and lets face it, those gurneys are not made to induce a nice nights sleep.
the hospital treats conditions.
you cant heal or rest in a hospital.
Im sure there are some, but I am about ready to claw myself out of here.
I had a full house of company tonight, I even think my niece isnt talking to me after she said I gave her a heart attack almost(Imy friend asked, hey, what happens if your pump unplugs, and I said, dunno, unplug it, and when he did, my niece was objecting loudly, he pulled the plug, I immediately fell back on the bed like I passed out, and my niece almost went ballistic. Cant a sick guy have some fun?)
full house of company, but it doesnt make it easier when these late hours come with the isolation, the feeling of loneliness, almost as if this will never end. and I love going away alone, never bothered me, but this is just way too depressing.
Im not promising myself I will be healthy after this, I know this beast will not die easily.
but I also know most I spoke with started with my symptoms, and now are in worse shape, so I agreed to try something that my doc feels will be very rewarding for me.
halfway through the third dose, Im counting the hours.
feel good everyone.

day 4 6:25 am,nothing exciting to report, finished up at 2:15 am, wanna get 4th dose in at 10:15.

Allen,

I am so glad you did this post, I feel like I am taking the journey with you. I hope you get relief from the IVIG, just remember, some say it takes a few times before the effects are felt. NEVER give up and keep staying strong!

You continue to be in my thoughts

Hang in there Allen! One more night before the big game!

finished my fourth dose, and I got smart today, since I was suffering from mild headaches after the dose.
I requested some normal saline solution to moisturize my nose, this benadryl,and the hospitals forced dry heat was killing my sinuses and tonight, I feel good, just a bit of swelling and tenderness at the iv site, so its getting changed shortly.
It could be me, I move around alot, and who knows, Maybe I pulled on it too hard, but its getting changed soon.
Its only 9 pm here, but its complete silence here tonight, scary almost, like everyone left.
I hear the air running out of the ducts, and can hear the nurses speaking softly down the hall at their station.
I was laughed at today, since I insisted the resident physician who sees me here, my neuros flunky,and the cardiologist, all who wont be here tomorrow, make sure they filled out my discharge papers for when I finish tomorrow, no matter what time.
I was told today there is a waiting list for the bed, that people are waiting 2 days downstairs for beds, so im sure theyll send me as soon as the last drop heads in.
nothing new otherwise, my friends were here tonight and said, wow, this hospital is so nice, a beautiful room, think of it as a vacation, relax and read and watch tv.
I dont know what stopped me from stabbing her in the heart with an IV stick, but I held my feelings inside.(I love her, so she got away with it)

i like my nurse tonight, had her 2 nights ago.
I told her no matter what, wake me, and get that 5th dose into my arm at 5am, maybe Ill get out of here by 4-6 pm.
besides some chills at night, some weakness, nothing severe, I cant imagine having any problems at home tomorrow night.

5:12 am, had a lovely night actually, passed out comfortably at 11:30, fire bell went off at 1:30, they secured it, passed out again until 4:30 when I was woken up for pressure and temp check so they could get line going again.
In at 5 am exactly, Im on my way.......woooooohooooooo...(no relatives of the guy next to me stayed overnight last night)


not for anything other than feelings of a person being confined to a hospital bed.
for those who have never been in a hospital. female or male, we are all conscience of our bodies, how we feel, what we look like, etc....
I understand in todays day and age hospital nurses are way overworked and in this hospital one family member is allowed to stay here overnight with the patient. they have comfortable reclining chairs next to each bed and they supply blankets and pillows for a family member.
Ok, I understand, their are alot of elderly patients, or children, that are very frightened just because of their surroundings. Not miserable like me for reasons of discomfort or confinement, Im sure they suffer from that also. but feelings of actual fear, as I heard the elderly gentleman next to me telling his young nieces, when he begged one of them to spend the nights with him, he told them when wakes at night hes frightened not knowing where he is or seeing a familiar face, so one has stayed with him.
Now, Im not a prude, but I findthis a bit uncomfortable.this isnt a trained personal, and I have to make an extra effort to make sure when I get up at 2 am to pee, everything is covered, ya know, its the point of having a stranger sitting 5 feet from you when youre at your worse, and its not someone whos in the same boat as yourself, since lets face it, sick people tend to not give a hoot about anything except getting better.
I felt like everytime I got up to use the bathroom, or change clothes, shower, there were always eyes on me, and yes, Im paranoid, but when Im down and out, in a hospital bed, I dont need anything else making me uncomfortable. I did not complain, Im sure if I did, the relative would not be able to stay. Idnever do that.
but Id imagine if I was a 35 y/o woman, not being sexist here, Im not sure if I was half naked in a hospital gown, feeling like crap, having some strange man in my room all night long would not make me comfortable either.
Im not quite sure I understand it all, but when Im sitting here and a 25 y/o blond girl that looks like a model comes in at 10 pm to change my sheets, I could not care less if she sees anything, Im enjoying the view, yet, when Jose(that his name) my sweep up maintanence guy comes in, Id imagine him looking at a young woman laying here in a hospital gown would makea female patient a bit uncomfortable. I could be off here, so I wont go on, but comfort , personal dignity, is a big thing to me when at a hospital.eh,tihis is all off base, so I wont go on, just that I really didnt enjoy relatives of someone else in my sick room during my stay.

12 hours hopefully till I get to go home. gonna be a long 12 hours.

11:05 am, Im watching the second hand tick, Ive run out of things to look at.
my elderly roomate got bathed by a young woman, I think they have a title of pca, personal care assistant maybe? and I asked her if she would shower me, but I think my wife would divorce me, so I told her I was only kidding.
I think a fringe benefit of getting hand bathed by a 25 y/o female is something that cant be held against me, can it?
Im sorry, Im a middle aged man, thats how we are wired.