FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
|
Thread Tools | Display Modes |
![]() |
#6 | ||
|
|||
Junior Member
|
Hi Kate,
Just wanted to say welcome... I had a thymectomy in March - the build-up to the surgery was scary and as it turns out they prepared me for things that never happened. My surgery went well and I did not have to be on a respirator afterward. I was in intensive care for 2 days, a regular unit for aday and home on day 4. I was sore - and I didn't do much for a while. Tkae care of yourself - rest beforehand so you go in strong. I had IVIg beforehand and it helped alot. Until quite recently I was getting IVIg every two weeks - it is an amazing thing - you almost feel normal afterwards. You are young and they have had great outcomes with young people with thymectomies. It may take a while for you to feel results. I am still waiting for that magical remission but I do feel better than I did before the surgery. The Mestinon takes a while to dose correctly...you'll figure it out. Good luck and keep in touch! Gabe |
||
![]() |
![]() |
|
|