I was hopping some of you could help me.

My symptoms (over a period of 3 years) started with fatigue (disabilitating fatigue), and I noticed that it was hard to keep looking slightly up (a little above horizontal). Later my muscles began to feel like they were being tightened and I noticed holding my arms straight out was beginning to be difficult (muscles too weak).

Next my neck started hurting—hard to hold up head. Sitting is the worst. Found relief from a neck brace. Pain is difficult to describe, but kind of burning and pulling is the best I can do. The pain now goes all the way to my fingers. Now starting to have problems with double vision. It happens mostly at night when I’m tired.

Been to a Neurologist and Rheumatologist. The Rheumatologist happen to give me prednisone for what he wondered was PMR. I was on 60 mg of prednisone for about 7 months. Felt almost normal. Doctor took me off prednisone because he decided I didn’t have PMR.
I have had the blood test for MG, but it was negative. My eye doctor thought that I should try Mestinon. My PCP ordered Mestinon 60 mg 3 times a day. It seems to make some pain worse, but the muscle weakness “may” be a little better.

What do you all think? Are my symptoms anything like those of you who have MG? I need to find a Neurologist who knows about MG.