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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Tyson,
I am really surprised that ins. won't cover plasma exchange when from what I have seen it is much cheaper than IVIG. As for school, you know your body so you know if you can handle it. But from what I read about you, you are a go getter and very active and I am sure when you go to school you try to keep up with everyone so you wear yourself down. IF you can go slow at school than you could most likely go back but you would need to go slow! I know this is your senior year and want to be a part of it and how important it is to you so I hope you are able to go back. If plasma exchange gets approved {and I hope it does} than at least going back to school would be so much easier for you. Good luck and keep us posted! |
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#2 | |||
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Quote:
APPROVED ![]() They just needed to get prior authorization, and i got it today, and they faxed it to my insurance company, hopefully tomorrow i can get schueduled for it at UNC. Im so excited, its taking over my life right now. Duke also called and wants me to be a patient there, because of my unique case. So im getting in there, sooner rather than later. So awesome. hope you all feel okay. |
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#3 | |||
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That's excellent news, Tyson! I had a feeling that something was amis with the PLEX.
That's pretty cool that Duke wants you as a patient- sounds like you'll be getting top-notch care- that is awesome! I wish you luck, and that the effects of the PLEX will stretch longer than usual- I suspect that it'll work really well this time as those antibodies are being fought from multiple fronts! ![]() Nicky |
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#4 | |||
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Tyson,
Glad to hear your good news. Take care of yourself and we will believe that great things will come from this! Still praying for you my friend. Simon |
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#5 | |||
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Tyson, I don't know if you are in a public or private school, but going on homebound should not be a problem EITHER way. I've even had students who attended half-days -- mornings on MWF and afternoons on TTh, for example, so that they were able to attend some of EACH class when they had things like mono -- and the teachers were flexible in giving tests and accepting assignments. You will qualify as 504 (Special Ed. Medical Disability) if I'm not mistaken -- so, they should accomodate you.
__________________
~jana |
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#6 | ||
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That's wonderful new Tyson! You'll be feeling stronger from the Plex, so now school may not be an issue for you. Good luck with your upcoming appt, that's great! Take care.
![]() Hugs, Pat |
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