FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
01-21-2010, 04:12 PM | #11 | |||
|
||||
Senior Member
|
Hello and a big WELCOME to the best site on the web for MG! You are going to LOVE it here! I can guarantee you that! THe people are amazingly supportive and very bright. Plus we can all empathize in ways that other people are simply not able to do....
MG is called the "snowflake" disease b/c EVERYONE reacts differently to it. Granted, we all suffer from some of the symptoms, but we are all so different. I am 35 yrs old and have been dx'ed for almost 2 yrs now. It took me almost losing my life b/4 I was dx'ed. I was so desperate that I would have done/said anything to feel better, so when I was in the ICU I chose pred. I have suffered from EVERY side effect - except psychotic behavior. I have gained @ least 70 lbs. I think I have glaucoma. It is the pits, but I am able to swallow, walk, talk, BREATHE! Would I go the same route? Amazingly, yes! I was just too sick to make it without the pred. You may want to consult another neuro and see what he/she has to say about your illness. IT is a tricky little devil. I've known people that have been dx'ed with generalized MG, had their thymus removed and have been in remission ever since. You may be in that category. Don't ever give up hope! Hope is what keeps all of us alive and happy! From the little I've learned about MG it is not a progressive illness. Hang in there and I hope you feel better really soon! Big hugs! Erin Quote:
__________________
Erin . |
|||
Reply With Quote |
01-21-2010, 05:41 PM | #12 | |||
|
||||
Member
|
Hi Erin,
Good to see you back! If you think you have glaucoma, you should quickly be tested for it, the quickest you'll be dxed, the quickest you'll be treated and it'is no big deal: just a couple of eye drops mornings and evenings. Damages (reduction of the sight broadness) to the optical nerves are not reversible. Maurice. |
|||
Reply With Quote |
"Thanks for this!" says: | DesertFlower (01-21-2010) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Ambien CR Tablets Improved Chronic Insomnia In Patients With Co-Morbid Generalized An | Parkinson's Disease |