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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Hm, could this get anymore dissapointing w/o having to be in the hospital?
It was just a check up, but this is how it went down. Did his normal check up, looked in eyes because of headaches. etc, did the muscle testing. Right arm and leg pretty weak, yet otherwise quite well. Though the worst was at the end, when asking about skiing. He said, I was so close to itibation (sp) last time I was hospitalized that, I while going down the mountain I could collapse, going into respritory failure....How true do you think that is? Im getting a second opinion on Monday, about the ski trip. I have an EMG schueduled with them aswell. I want to try mestinon again to see if it will work, is that a bad idea while on cellcept and pred? They may suggest doing that on Monday at duke, but i want to try it NOW. Im really tired right now, just got back from ear, nose, throat doctor, and have 2 respritory infections sort of...1 from acid reflux, maybe causing chest pains...and the other just sinusy. And have a few ganglian cysts on my wrist.. Damn. Well, i need to nap. hope you all feel somewhat okay. |
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