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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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OK, so I originally joined the community because I was diagnosed with Fibromyalgia. It has been over a year since the diagnosis and I am worse. My doc has put me through every treatment option and nothing seems to work.
I learned about MG when I was first diagnosed with FM and immediately thought I had it (MG). I asked 3 docs and they all said it wasn't possible, as my eyes and face looked fine. I couldn't get anyone to listen. I thought I would shoot out my symptoms and just see what some of you all thought. My symptoms are: -Both arms (mainly wrist and hands) just feel numb inside. Like I can't get them to work properly without a ton of coxing. They hurt constantly and feel like they are on fire. -My legs just hurt. They never really want to work. -My brain feels like somebody opened my head and breathed some smoke in it. everything is foggy. -My throat hurts often but not all the time. -On good days, I can be active for about 4 hours. On bad days, I can't even get off the couch. -All of my muscles are extremely sensitive to pressure (not touch). I have to constantly shift positions because the muscles touching the chair just start burning. -All of my muscles just give out after moderate usage. I just have absolutely no stamina. -It is very difficult to hold my head up. It feels like my neck is just to weak to do it. -Sometimes I get really short on breathe. I just can't catch it. -I get really frustrated and angry really easy. I was never like this before. -I have absolutely motivation. In fact, I have stopped typing this message 3 times already. -My memory is non existent. I got lost driving home the other day...in my own sub-division. I have been ready others post about the dis-order and can't help feel a commonality. The problem is that any description of MG suggest eye problems...I don't have this. Plus, my symptoms occur for several days and then go away for several. Does this dis-order come and go like this? Thanks to any feedback. |
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