Senior Member
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Join Date: Feb 2010
Posts: 1,215
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Senior Member
Join Date: Feb 2010
Posts: 1,215
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starting Prednisone (I say, No, No, No...)
So I called my neuro to tell him I'm suddenly having much more trouble walking. My legs aren't that weak--I think it's my hip muscles. I tilt back and forth from the waist up.
The plan had been for me to get a second opinion from an MG specialist, since I'm seronegative and my SFEMG came back "borderline," before starting me on any immunosuppressants. But my appointment with the new specialist isn't until May 19.
My current neuro said he'd call the MG specialist and try to get me in sooner, but if he can't, we should start Prednisone right away.
I'm inclined to decline. I am not having trouble breathing, swallowing, chewing, or seeing. I would rather deal with my walking problems--I have ordered a four-wheeled walker with a seat--for a month if I have to, and then start Imuran or CellCept. I know these work more slowly, but I am afraid of Prednisone and its side-effects.
I'd welcome people's comments and opinions. Thanks, as always, for your kind support, and I wish you all a day of lifted spirits.
Abby
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