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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Thank you so much for responding Lizzie!
I am still trying to get answers and it has been really frustrating. . .it took a week to find out they could not locate the CTA of my chest I sent by courier and I had to get a 2nd copy and hand-deliver it only to find out that neuro won't comment on it until all the results are in. Why would that be? I let my neuro know all the symptoms that were MG related and he said that even if all the tests results come back negative, he wants me to go to their neuromuscular expert now. So that is news. I guess there is enough to be moving in this direction at least. Another question, I realized that over the last few months I cannot really yawn anymore but have not told anyone. I can't get enough breath down in my lower belly. It is like it stays in my throat and nothing happens. . .does that have anything to do with MG? Thanks again. . . |
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