Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 05-26-2010, 01:29 PM #11
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I will give them that, they can rhyme and create nice verses to fit the original song.
Id still smack them on the sides of their heads, but Id smack them only on the upbeats so Id keep the flow of the music going.
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Old 05-26-2010, 01:37 PM #12
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I sort of agree with Allen.

I also think that putting things on YouTube, may not be appropriate for all subjects.

I recall recently some YouTubes made by doctors that were yanked off the site, because of inappropriate content! (It was reported in our Health News Headlines forum)

When I took human anatomy in college which was from the medical school, the humor (????) there was horrific. Black and often disrespectful of the bodies we had to work on. We had "parts boxes" too, and these were often used for pranks by the instructors. I never really recovered from that class. The professor who gave the lectures was a senior citizen and he was the "worst" offender. Some humor is therapeutic, but what I had to endure was way beyond "some".

There are days we can laugh at ourselves, and other days when our pain may be too great to be able to do so. So I think videos like this should remain within the system that made them, and not be for public consumption.

I was never able to make fun of the poor bodies in my anatomy class. They were unclaimed older people from nursing homes or the street. The respect you see today on Dr. G's show from Disovery Health, was not present when I took that class!
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Old 05-26-2010, 01:54 PM #13
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Freedom of speech and expression is necessary in our society, and that has to be for everyone - whether we like it or not. The only thing we can control is how we react to what someone says or does.

I personally do not like verbal or physical abuse of any kind but I know it exists. I simply choose not to be a part of it.

I'm sorry if that video upsets anyone but there's nothing I can do about that either - only each one of you can. Either watch it or don't. At least we have a choice like that in our country.

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Old 05-26-2010, 03:14 PM #14
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I sorta agree with Allen too....I've often noticed that people make light of certain diseases (like STDs (because of our view on promiscuity, or perceived promiscuity...religion still having a strong force), or any infectious disease, for that matter, (except for maybe HIV because of maybe its permanence and political-ness)), but wouldn't dare joke about others (like cancer and so on)...Heck, I joke about my disease too, even though the reality is that it's not actually funny, deep down...It's really different when someone who doesn't have the disease laughs about it...I think this why I always make a point to point out my own weakness (when I'm slurring/nasaling) with friends and family because I don't want to be laughed at, but laughed with...

I definately think that the kids were finding a creative way to explain the diseases...It's probably a mixture of desensitization, light-heartedness, but also the idea that both are seemingly temporary states that usually don't lead to death, or cause extreme disability (at least that's the medical perception)...

ALS has similar weakness to MG (minus the ocular muscle component), but there's no recovering from that weakness. With MG, we do go back to normal somewhat (or that's the perception, but often, that's not really the case, as we all know), so maybe that's why it's seen as okay to sorta laugh about it- since it's fluctuating weakness-it's not permanent (even though it kinda is?)....I've seen people joke about Steven Hawking, and I've always viewed it as in really bad taste. But it's funny how when I saw this video, I understood it, but also felt a little hurt...But the feeling I had wasn't as bad as when I've heard people joke about Steven Hawking...

I see what you're saying, Mrs. D...Maybe because the bodies that were being used were seen as societal throw-aways, it was viewed as okay to laugh at them, or joke around about it...I have a feeling that maybe it's just a way to cope with a dire situation, but I see what you're saying...I see it as black humour too...Things like this could be funny on some level, but it sorta leaves a bad taste in your mouth after....

I think this is an interesting conversation...It's good to exchange views on things....People have the right to their say, and people have the right to their say! lol


Sorry about all the brackets! LOL
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Old 05-26-2010, 03:35 PM #15
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freedom of speech?
This has nothing to do with freedom of speech.
This has to do with the lack of compassion expressed by a bunch of nursing students who are making fun of an obscure disease with a funny sounding name. Lets face it, if you would stop 500 people today in the street, and say what is myasthenia gravis, youd get 500 different answers, like a rock band, a species of plant, maybe one would get the disease right.

The entire aura of the video is insensitive, uncaring, and unthoughtful, and most of all, unprofessional and childish.
Im glad I dont live in the state of Iowa only because one day one of those nurses might get a shot being responsible for my well being.

Diseases dont have to be deadly to ruin peoples lives.
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Old 05-26-2010, 04:01 PM #16
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Did you notice the other videos listed to the sides..
they are about many other illnesses & conditions also. Not only MG.

If someone does want to complain contact the nursing school / college and write to the teachers or head of that dept.
If the students are just doing a lesson /presentation it isn't their call - it's the teachers choice to make it a lesson and post it online most likely..

here is the link to the school -
Iowa Lakes Community College

Iowa Lakes offers the first two years toward a bachelor's degree in a variety of Arts and Science fields and technical career programs.
http://www.iowalakes.edu/

[ HEALTH
Associate Degree Nursing
Health Care Administration
Massage Therapy
Medical Assistant
Medical Assistant Specialist
Paramedic Specialist
Pharmacy Technician
Practical Nursing
Surgical Technology
Transfer Programs]
http://www.iowalakes.edu/programs_study/index.htm
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Old 05-26-2010, 04:34 PM #17
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Allen, it put me off, too. I think it's great that some people can find it funny, but your reaction isn't out of line. Maybe it doesn't help, too, that since a lot of people haven't heard of mg, and it can be pretty invisible, getting it taken seriously already tends to be a problem. For instance, the next person who says, "Oh, yes, I've been feeling tired lately too," or suggests that a healthy diet might make me feel better is going to get smacked somewhere delicate with a big bunch of collard greens.

Abby
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Old 05-26-2010, 05:27 PM #18
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Thanks, JoMar for posting that info. All anyone can do is to contact the appropriate people and file a civil complaint. I personally do not like all this talk about abusing others, guys. No one, even if they are doing something childish or hurtful, deserves to be hurt in response. Anger is a normal response but it's not an excuse to hurt anyone else.
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Old 05-26-2010, 08:43 PM #19
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Allen, you certainly have the right to your opinion. I was just trying to explain the possible circumstances.

I hope that you won't let this STRESS you -- it certainly is NOT worth that!!! Avoid stress whenever possible!!
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Old 05-26-2010, 08:59 PM #20
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I guess I taught high school for WAY too long -- I am forever "warped". This video really doesn't even faze me.

I met a lady online whose husband is dying of ALS -- he hasn't gotten out of bed in two weeks. They have three kids -- he probably won't see any of them graduate -- or marry -- or have kids............stuff like THIS gets to me.

There were two police officers killed last week while on duty -- they left wives and children -- THIS gets to me.

Nashville was badly flooded -- probably the WORST non-hurricane flood in U.S. history. Friends sent me videos -- I didn't even recognize half of the landmarks -- and couldn't understand WHY it took so long for the national news to pick up the story -- THIS gets to me.

My daddy always said -- "you can't fight everyone, so pick your battles".

Getting worked up over a video is a waste of my energy. No offense intended to Allen or anyone else.
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