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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | |||
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Senior Member
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Just got back fro another stay at the hospital
![]() ![]() ![]() How have you been doing? I read most of the posts but haven't had a chance to this time...... We got to Scott and white in a few weeks to see how to lower my dose of red and still get better..... Can't wait to hear from all of you! Love Erin
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Erin . |
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#2 | ||
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Member
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Sorry to hear that you continue to have BIG problems. Darn good thing that you have such warm and determined spirit. Things have to turn around for you soon.
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#3 | |||
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Member
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Quote:
I am so happy you are back! Fevers are terrible and scary, glad you are over that. This MG stuff is no fun, I do hope that you are able to lower your pred dose as soon as possible. It seems like everyone that takes it has a bad experience, with the exception of short term use for emergencies. I hope the best for you. Take care. ![]()
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#4 | ||
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Great to see you back.
So sorry that you have to go through all this crap. Seems to be never ending for you. I am still overing around the forum, I read the posts but don't tend to get involved as much now. But I was so happy to see you posting on here I had to join in! Lots of love Rach |
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#5 | ||
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Member
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So sorry you were in the hospital again sweety and hope you're feeling much better! Sure hope you're able to reduce the pred and eventually wean off it for good! Missed you and it's so nice hearing from you. Enjoy your new iPad! Take good care of yourself.
![]() Big Hugs, Pat |
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#6 | ||
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Junior Member
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Erin you are my hero on this forum. I read all posts, and rarely post. Happy you are home and posting . MRSA is most alarming itself without the additional perplexity of your other medical issues. Ceaselessly praying for you and your family. Be well MG friend.
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#7 | ||
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Member
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Erin-
Thanks so much for keeping us updated as you can. We all think of you often and hope that things improve dramatically for you soon...you have been through so much and have such a wonderful determined spirit!! Hope you find a better med combination so you are able to wean off the pred. Sue |
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#8 | |||
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Senior Member
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I am so grateful for all of the love and support on this site!
![]() It has been really hard Keeping a stiff upper lip, but then I think of others and remember how blessed I am! MRSA really takes it out of you............... ![]() I hope this post finds everyone strong and healthy! ![]() Love, Erin
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Erin . |
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#9 | ||
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Member
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Erin
![]() I'm so glad that you have been able to post to let us know how you are doing but am sorry to hear the additional problems you have experienced. Your determination and positive spirit has helped you to weather your storms and has been a tremendous inspiration to all of us. I have been praying for you and will continue to do so every day. We all love you VERY Much! ![]() Sweet Blessings To You, Shari |
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#10 | ||
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I check in alot looking for a word from you. Im glad you posting and doing ok.
I missed you. |
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