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Old 09-10-2010, 07:40 PM #3
TRESA TRESA is offline
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Join Date: Sep 2010
Location: Kansas/Texan
Posts: 144
10 yr Member
TRESA TRESA is offline
Member
 
Join Date: Sep 2010
Location: Kansas/Texan
Posts: 144
10 yr Member
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Quote:
Originally Posted by AnnieB3 View Post
Tresa, Well, it may not be the medication that is causing your BP to jump like that. You really need to have that assessed, probably by a cardiologist. Have you tried lying down for a few minutes and taking it and then sitting for a minute and then taking it again? I wouldn't suggest standing with changes in a BP like that! Make a log of that happening, including what happens with your pulse.

There's orthostatic hypotension, which is when your BP drops 20 or more (systolic) when you sit or stand up. And then there's orthostatic hypertension, when your BP goes up 20 or more (systolic) upon siting/standing.

Not so brilliant of someone to order an EMG without telling you to go off of Mestinon first.

The BP seems far more urgent at this point. Can you see someone right away on Monday? Call your primary doctor and see if they can fit you in. They may want to run some basic tests. Please take that one seriously. If you are feeling "weird" when these changes in BP occur, it is absolutely a good idea to go to the ER. You don't want a heart attack or stroke!! Not to worry you, just to state that changes in BP like that are so not normal.

I hope you have better luck with the next test.

Annie
Thanks Annie! I need a hug of encouragement. I have had cardiac tests and lungs etc-all normal - fortunately-yet I occassionally get these weird attacks -usually high BP-like 190/130!! And severe chest pain. Boils down to a potassium problem and there's kidney problems etc etc. Most of the time it has been remaining stable but I really think stopping the Mes is affecting the heart muscle or something. Im still waiting for CT scan of thymus which can actually invade your heart and other organs or be very hyperplasia etc. I hope I can hang on long enough for them to figure it out. Im checking BP every hour. Took a Xanax (my anti-anxiety drug of choice lol) to keep stress down-should help.
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