Annie, it seems I went into the place when I am sick and didnt see your answer here. I hope it is all right if I respond now. I did a search on emg post looking for another and found this.

It was indeed myotonic which I wondered was part of the reason they tested me for myotonic dystrophy. But when I went thru the notes I saw that the pulmonologist was the one that specualted it was this because my breathing was worse at that point than made sense for the standard MG (in relation to the severity of other symptoms).

What is myogenic versus myotonic. I assume you know this area more than I do. I will look back in the notes to refresh but it was myotonic.

About the genetic disorder link I took a quick peek. What is maybe unfortunate is I had a rep at the company that makes the only treatment for Myotonic Dys (Genzyme) come to my support and make an appoitment for me at the univeristy with the new genetic specialist. I had just seen the 2nd neuro for what I thoguht was gonna be treatment for POTS/autonomic dysfun and we discovered he had totally did the whole in your head/your fault thing dissmissing me. My daughter was furious and I knew if we saw another doctor that did that it would be disatrous. I cancled the appointment. I was stunned by that neuro having his mind made made up as he did before he saw me. He suggested my dizziness was because I was not drinking enough water or even hyperventilating both of which are not true. Esp the water thing was a big slap as I have Sjogrens so I HAVE to pay close attention to hydration for my eyelids to even move well across my eyes much less swallow first thing in the morn.

Annie59