Annie:

Can you explain the counting test more? When do I stop counting and what am I counting? Thanks!

Annie59, Are you talking about counting respirations?

Guys, any pulmonary situation needs to be assessed by a pulmonologist. Don't "trick" yourselves into thinking that some breathing respiration algorithm applies to MG patients or to all MG patients. We are all different. Some people can do just fine when their breathing gets worse but others cannot.

You need to have a discussion with your pulmonologist about this, not your neurologist. Why? Because they are two distinctly different specialties! MG involves both specialties, especially when breathing gets worse.

I hesitated to post some information because I don't want it to be a substitute for doctoring!!!

In an MG crisis situation, neurologists, along with pulmonologists, look at a variety of issues. It's good to learn about all of this but the BEST way to decide if you need to go to the ER due to poor breathing or increased generalized weakness or inability to swallow is the fact that you have those things going on!!! And "relative weakness" is as important as absolute weakness. If you are relatively okay and you get weaker fairly quickly, even though it's not severe yet, that is a reason to go in too!

Annie

http://bcs.medinfo.ufl.edu/sample/page04.html

http://www.neurologyindia.com/articl...ulast=Aggarwal

http://books.google.com/books?id=fhY...ations&f=false

http://emedicine.medscape.com/article/1171206-overview