AnnieB3, Just rereading your message. My lung doc said Tuesday that he has another patient in ICU he wants to do the test on and it does need to be a double blind he added which is great by me as the last challenge and even the mestinon has been ignored for this very reason. I mean an assumption of the placebo affect or the like. I welcome it. He said he was gonna check with the pharmacy so I hope they cooperate. This would be a great piece of evidence.
Annie59
Quote:
Originally Posted by AnnieB3
Annie, They have not discontinued Tensilon and, as far as I can tell, there is no shortage of it. The "trend" with neuros has been twofold. One, they are afraid of patients having adverse reactions to it and, therefore, getting sued. Two, if it isn't done "double blind," then the results are often called into question, even if improvement of ptosis is immediate and obvious.
Certain neurologists don't do the Tensilon test. I'm not sure of any in MN who do.
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11-04-2010, 08:18 PM
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