[Poetist]

Well, I took the advice of others on this board, and I went to a clinic that only specialized in MG patients. For the first time, I saw MG patients in the flesh.

The welcoming was quite nice, and there were two doctors on staff. The older doctor was better of the two and more favored.

Tell me why did I end up with the lesser desired doctor?

It was just my luck, but wait my luck gets better!

Anyway, I had a falling out with the lesser doctor, because I did not speak too kindly about one of the neuros who saw me.

It was the very neurologist that I only saw ONCE and quickly replaced with another doctor. Little did I know that lesser doctor and the neurologist I saw only ONCE were good acquaintances.

He was determined to protect her good name. (FYI: she is a very pretty doctor, and they come from the same country). That was when I had about had it.

I had to tell him this woman did not once look at my chart and made medical suggestions, such as shouldn't you be seeing a lung doctor, get a sleep study, get a MRI, and etc.?

I asked him, what doctor does not review a chart before the patient arrives -- if not before at least briefly in the patient's presence. He did not respond.

My visit went from discussing my enlarged thymus to the doctor questioning my MG diagnosis, which I finally had three doctors confirming, one with more credentials than his.

I told the doctor I did not care about the MG diagnosis; he did. He said I should have the right diagnosis. Plus, he said he never heard of a patient having asymmetrical weakness, with the exception of ocular asymmetrical weakness.

In part, I agreed with him that I should find the right diagnosis, but I wanted to know whether or not I should have my thymus removed which has 5.7 cm of tissue on it. I fear that if what I have is not MG than it must be some tumor, because that was what I found out from my research. That was my primary concern, but we got in a heated discussion about how I thought his doctor friend sucks as a doctor.

If he was so concerned about my health, he should direct me to the area I should be looking into, if it is not MG, in which I welcome.

Anyway, cooler heads did not prevail.

I guess I kept in what I thought of pretty doctor, and when he mentioned how stellar of a doctor she is, I blew it.

This was the very doctor, who told me to sleep on a tennis ball, because I had trouble breathing at night. She just did not get how I feared not being able to wake up at night.

After I walked out of the MG clinic, I really did not want to return, but the MG patients consoled me and told me that lesser doctor has a tendency to tell patients that they don't have MG and was not the best. They gave me hope that perhaps I can see the good doctor.

I will give it another shot. I hope to see the other doctor, because I will walk out if I see that jerk. My time is too precious to sit with doctors who do not address my concerns.

The good thing is that I think I'm developing a new attitude. It's slightly aggressive and too the point. I just wish I had more facts to back what I've read on the internet.

Friday, I will go to my HMO's neuro-muscular specialist for my scheduled visit and to make an appointment for another round of MRIs to monitor the tissue on my thymus.

Sometimes, I am so sick with all of this, but I just wish doctors will get off of their high horse and just listen to patients. I don't give a flying flip about a diagnosis as long as the medicine is working, because I have come to grips that I will always have this weakness. What I can't have compromised is my breathing.