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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Member
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Here's an update if anyone's still interested.
Monday, I went to the doctor. He asked if I read his email, and I played it off as if I thought it was an old reading. He said it was not, then that was when I said I was bit confused since they were quite similar. I got the doctor to review the radiologist report. (Thanks for the tip Mvoyvich) Anyway, he pulled it up on the computer and read it. I asked about the discrepancies. He looked at my old records, and he said that MRI and CTs can have different reading and measurements. I pretended to agree, but I stayed on the point that one said a remnant and another said the thymus was 5.7 cm., leaving the thought that it was a vast difference in the air unsaid. I did maintained my stance that I have to understand why I was fighting to breathe one year ago, which started all of this. I mentioned the quick turn around/analysis of my MRI and he said it was possible for the radiologist to do the report in that time. In fact, I think I was off by 22 hours, so I actually had my appointment nearly one day before the email. So, there was a possibility it was read, but it didn't explain the drastic size change or why it was written as if contrast was administered. The doctor said I should get a second opinion. I didn't want to make a big deal of it, but I did ask the doctor to give a printout of the report, even though he quietly told me he shouldn't be giving this report. I kindly thanked him and inched out the room. |
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#2 | ||
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Grand Magnate
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I should mention that CT's are notoriously "wrong" when it comes to measuring anything in the body. I had a situation where a radiologist measured my kidneys and he was off by about half, which is significant for a kidney (meaning it looked like it had shrunk). So it may be that the information you got was correct, given the restraints of the "tools" used to measure the thymus.
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#3 | ||
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Member
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That is true, but I had 3 CTs and 3 MRIs. Out of the six tests, 2 said remnants (the very first and the last) and four measured something that was 2.5 cm to 5.7 cm.
What I know about CT scans is to think of a moving tire with a nail in it. The CT scan may get the shot of the nail or it might miss out on that image. |
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