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Old 02-11-2011, 12:11 AM #1
Tracy9 Tracy9 is offline
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Join Date: Dec 2010
Posts: 166
10 yr Member
Tracy9 Tracy9 is offline
Member
 
Join Date: Dec 2010
Posts: 166
10 yr Member
Exclamation MDA appt was horrible; aren't they supposed to be the best???

I wont' even go into what I had to go through to get there, but my appt was awful.

I thought I was seeing a team of people, but it was one doctor for 30 minutes. Though I have a positive AChR test, not mild to moderate, POSITIVE, all the symptoms, and better on Mestinon, for some reason he doesn't feel "convinced" I have MG because of my long history of Chronic Lyme and maybe some of the symptoms overlap.

He ordered ANOTHER antibody test, this one not even through Athena labs as my neuro did, but just at whatever lab, a CK bloodtest and some thyroid tests, and an EMG!!! Not a single fiber EMG, a regular one!

This seems contrary to everything I've read. I don't feel it is worth it to go back there or have the EMG, I had one two years ago and it was normal.

How do I find a neuro who specializes in MG? I thought the MDA clinic was the way to go. My neuro is moving to CA plus he doesn't specialize in it and only knows the basics. What a huge disappointment. Should I try another MG clinic elsewhere? Will they let me?
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