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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#8 | ||
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Grand Magnate
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That was very astute thinking on your doctor's part.
I know someone who's doctor had done too dramatic of a dose drop of Pred and had all the signs of an adrenal insufficiency. Very scary. She took more of it and was better. This drug stuff is dangerous. Same thing can happen when you take a hypertension drug. People who go off of them can have "rebound" hypertension that is worse than it was before they got on the drug! There are a lot of situations where you can feel short of breath and it's not MG. Like when blood glucose is low or when electrolytes are off. And be careful about taking more Mestinon! So have your primary find a VERY knowledgeable pain or addiction doc and get some help. I'm glad your "experiment" worked! I'll bet you're relieved. Annie |
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